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Cancer Survivorship Care: Person Centered Care in a Multidisciplinary Shared Care Model

机译:癌症幸存者护理:多学科共享护理模型中的以人为中心的护理

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Survivors of childhood and adult-onset cancer are at lifelong risk for the development of late effects of treatment that can lead to serious morbidity and premature mortality. Regular long-term follow-up aiming for prevention, early detection and intervention of late effects can preserve or improve health. The heterogeneous and often serious character of late effects emphasizes the need for specialized cancer survivorship care clinics. Multidisciplinary cancer survivorship care requires a coordinated and well integrated health care environment for risk based screening and intervention. In addition survivors engagement and adherence to the recommendations are also important elements. We developed an innovative model for integrated care for cancer survivors, the “Personalized Cancer Survivorship Care Model”, that is being used in our clinic. This model comprises 1. Personalized follow-up care according to the principles of Person Centered Care, aiming to empower survivors and to support self management, and 2. Organization according to a multidisciplinary and risk based approach. The concept of person centered care is based on three components: initiating, integrating and safeguarding the partnership with the patient. This model has been developed as a universal model of care that will work for all cancer survivors in different health care systems. It could be used for studies to improve self efficacy and the cost-effectiveness of cancer survivorship care.
机译:儿童期和成年期癌症的幸存者终身处于发展晚期治疗的危险中,这种治疗可能导致严重的发病率和过早死亡。定期的长期随访旨在预防,及早发现和干预后期影响,可以保持或改善健康。晚期效应的异质性且通常是严重的特征强调了对专门的癌症幸存者护理诊所的需求。多学科癌症幸存护理需要基于风险的筛查和干预的协调且高度集成的医疗环境。此外,幸存者的参与和遵守建议也是重要因素。我们开发了一种创新的癌症幸存者综合护理模型,即“个性化癌症幸存者护理模型”,该模型正在我们的诊所中使用。该模型包括1.根据以人为本的护理原则,进行个性化的后续护理,旨在增强幸存者的能力并支持自我管理;以及2.根据多学科和基于风险的方法进行组织。以人为本的护理概念基于三个组成部分:启动,整合和维护与患者的伙伴关系。该模型已开发为一种通用的护理模型,适用于不同医疗保健系统中的所有癌症幸存者。它可以用于提高自我效能和癌症幸存者护理成本效益的研究。

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