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Needs of Siblings of Persons with Psychosis: A Systematic Descriptive Review

机译:精神病患者兄弟姐妹的需求:系统的描述性回顾

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Research on caregivers of psychosis has predominantly focused on parents and spouses. Issues related to siblings of persons with psychosis (SOPP) are yet to be evaluated comprehensively. Like parents and spouses, SOPP also share the caregiver burden and have their own issues and needs. This systematic descriptive review aims to identify the types of needs of SOPP in the published literature and gives implications for further practice and research. The primary data search was carried out with predefined protocol in PubMed database and an additional hand search was done in EBSCOhost, ProQuest, Scopus, and PsychINFO. All the searches yielded a total of 862 titles. After screening for necessary inclusion criteria, seven studies were included in the final review. The results are discussed under six major themes that emerged from this review. Six out of seven studies highlighted the need for information on siblings' illness and participation in caregiver support group. Other important needs were illness management or rehabilitation needs; help in managing their own psychosocial issues; treatment related informational needs; and inclusion in treatment process. The socio-demographic details of these studies showed that majority of the participants were female siblings of Caucasian or white British ethnicity and from developed countries. SOPP predominantly have specific needs such as informational and support group needs, which are different in the priority of other primary caregiver needs. Paucity of literature from developing countries and the limitations of the existing studies warrant further systematic research.
机译:对精神病监护人的研究主要集中于父母和配偶。与精神病患者同胞(SOPP)有关的问题尚待综合评估。与父母和配偶一样,SOPP也分担照顾者的负担,并有自己的问题和需求。这种系统的描述性审查旨在确定已发表文献中SOPP的需求类型,并为进一步的实践和研究提供启示。主要数据搜索是使用PubMed数据库中的预定义协议进行的,另外的手动搜索是在EBSCOhost,ProQuest,Scopus和PsychINFO中进行的。所有搜索共产生862个标题。在筛选出必要的入选标准后,将七项研究纳入最终评估。在此审查中出现的六个主要主题下讨论了结果。七项研究中有六项强调需要获得有关兄弟姐妹疾病和参加照料者支持小组的信息。其他重要需求是疾病管理或康复需求;帮助管理自己的社会心理问题;与治疗有关的信息需求;并纳入治疗过程。这些研究的社会人口统计学细节表明,大多数参与者是来自发达国家的白人或白人英国女性兄弟姐妹。 SOPP主要具有特定的需求,例如信息和支持小组需求,这些需求在其他主要照顾者需求的优先级上有所不同。发展中国家的文献匮乏以及现有研究的局限性需要进一步的系统研究。

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