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Exploring the experience of supporting a loved one through a medically assisted death in Canada

机译:探索在加拿大通过医疗协助死亡支持亲人的经历

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Objective To explore the experience of family and close friends of patients seeking medical assistance in dying (MAID) in Canada. Design Qualitative study using semistructured interviews. Setting A clinic in Vancouver, BC, that provides MAID services. Participants Eighteen support people for patients seeking MAID. Methods Clinic patients seeking MAID identified their primary support people during consultations for an assisted death evaluation. Identified support people were invited to participate in the study, and those who were interested were asked to contact the interviewers. Semistructured interviews were conducted, transcribed, coded, and subjected to content analysis to elucidate common themes. Main findings All participants were supportive of their loved one’s wish for assisted death and they provided emotional and practical support in preparation for MAID. Support persons talked about the journey they went through from their loved one’s diagnosis to the MAID request to the actual death. Some were initially opposed but changed their minds after seeing the suffering their loved ones endured. The time before the assisted death involved saying goodbye and, for some, ceremonial rituals (celebration of life, poems, singing, etc). Those interviewed after their loved one’s assisted death found the death peaceful and reported that it offered advantages compared with natural death in their loved one’s individual circumstances. Conclusion This study provides insight into experiences of support people coping with a loved one who is seeking or has sought MAID in the context of a country unfamiliar with the legal process of a planned and hastened death. Participants were supportive of their loved one’s wishes for assistance in death to end suffering and found the process to be peaceful overall.
机译:目的探讨加拿大寻求垂死医疗救助(MAID)患者的家人和密友的经历。使用半结构化访谈设计定性研究。在不列颠哥伦比亚省温哥华市设立一家诊所,提供MAID服务。参加者18人为寻求MAID的患者提供支持。方法寻求MAID的临床患者在会诊期间确定了他们的主要支持者,以进行辅助死亡评估。邀请了确定的支持人员参加研究,并请有兴趣的人员与访问员联系。进行了半结构化访谈,转录,编码,并进行了内容分析,以阐明共同的主题。主要发现所有参与者都支持他们所爱的人希望死亡的愿望,他们为MAID的准备工作提供了情感和实践支持。支持人员讨论了他们从亲人诊断到MAID请求到实际死亡所经历的过程。最初有些人反对,但在看到亲人遭受的苦难后改变了主意。辅助死亡之前的时间包括说再见,以及某些仪式(生活的庆祝,诗歌,唱歌等)。在亲人的辅助性死亡之后接受采访的人发现死亡是和平的,并报告说在亲人的个人情况下,与自然死亡相比,死亡具有优势。结论本研究提供了有关在人们不熟悉计划或加速死亡的法律程序的国家中,帮助人们与正在寻求或已经寻求MAID的亲人相处的经验。参加者支持他们所爱的人的愿望,即为死亡提供帮助以结束痛苦,并认为这一过程总体上是和平的。

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