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The cerebral palsy transition clinic: administrative chore clinical responsibility or opportunity for audit and clinical research?

机译:脑瘫过渡诊所:行政事务临床责任或进行审核和临床研究的机会?

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摘要

PurposeThe majority of children with orthopaedic conditions in childhood survive to adult life, and there is a need for many of them to transition to adult services. This includes children with disorders such as club foot or developmental dislocation of the hip as well as those with complex syndromic conditions, bone dysplasias or neuromuscular disorders such as cerebral palsy and myelomeningocele. In many tertiary paediatric centres, transition has become a formal process in which clinicians document and communicate the status of patients who have been under their care to ensure a smooth transfer to adult services. The purpose of this report is to support the need for clear communication when children with cerebral palsy transition to adult services and to suggest that this transition represents a significant opportunity for audit and clinical research.
机译:目的大多数患有骨科疾病的儿童在童年时期都能生存到成年生活,因此他们中的许多人都需要过渡到成年服务。这包括患有诸如马蹄内翻足或髋关节发育脱位等疾病的儿童,以及患有复杂的综合征,骨发育异常或神经肌肉疾病(如脑瘫和脊髓膜膨出)的儿童。在许多三级儿科中心,过渡已成为一个正式过程,临床医生在此过程中记录并传达所护理患者的状况,以确保顺利过渡至成人服务。本报告的目的是支持脑瘫患儿过渡到成人服务时进行清晰沟通的必要性,并建议这种过渡代表了进行审核和临床研究的重要机会。

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