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The Quality of Life of a Multidiagnosis Group of Special Needs Children: Associations and Costs

机译:特殊需要儿童的多种诊断组的生活质量:关联和成本

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摘要

Purpose. To determine the quality of life, associations, and costs of a multidiagnosis group of special needs children. Methods. In this cross-sectional survey families were identified from the Children's Treatment Network, a Canadian multisector program for children with special needs. Families were eligible if the child was aged 2–19 years, resided in Simcoe/York, and if there were multiple child/family needs. Quality of life was measured using the PedsQL (n = 429). Results. Quality of life scores were lower in this group compared to published healthy and single disorder groups of children. Quality of life scores decreased with advancing age. Child psychosocial well-being was more strongly associated with child/family variables compared to physical well-being. Health Utilization costs were higher in children with greater physical challenges. Conclusions. Further research is needed in other complex needs child samples to confirm the decrease in quality of life found in these children into adolescence. Investigations into the interactions of child and family variables are needed.
机译:目的。确定具有多重诊断需求的特殊儿童的生活质量,关联性和费用。方法。在这项横断面调查中,从儿童治疗网络(加拿大针对特殊需要的儿童的多部门计划)中识别了家庭。如果孩子年龄在2-19岁之间,居住在Simcoe / York,并且有多个孩子/家庭需要,则家庭有资格。使用PedsQL(n = 429)测量生活质量。结果。与已发表的健康和单一障碍儿童组相比,该组的生活质量得分较低。生活质量得分随着年龄的增长而下降。与身体健康相比,儿童的社会心理幸福感与儿童/家庭变量的相关性更高。身体挑战较大的儿童的卫生利用成本较高。结论。需要对其他复杂需求儿童样本进行进一步研究,以确认这些儿童进入青春期后生活质量的下降。需要调查儿童和家庭变量之间的相互作用。

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