16 Assessing the requirements for a patient-facing virtual platform to enhance care coordination for children with medical complexity

摘要

Children with medical complexity (CMC) require specialized care from multiple health care providers across various settings; hospital, home and community. Communication and care coordination are essential to provide streamlined, accessible care. Currently a child’s executive medical summary, known as a care plan, is thought to be the gold standard in assisting with care coordination. However, there are many limitations regarding care plan use such as: lack of shared ownership, limited capability to update in real-time, and lack of universal access. Previous literature indicates that care plans should be cloud-based and comprehensive, allowing for more functions other than the executive medical summary alone.