MAINTAINING VOICE MINIMIZING BIAS: USING QUALITATIVE METHODS TO PRODUCE ME AND MY WISHES VIDEOS

摘要

Technology use in long-term care settings can facilitate person-centered care. Me & My Wishes are facilitated, person-centered video-recorded conversations to communicate everyday living and end-of-life (EOL) care preferences. Four 5-minute video modules (about me, preferences for today, preferences for end of life, and afterthoughts) provide long-term care residents an opportunity to talk about their wishes in a way that facilitates conversations with staff and family. Me & My Wishes videos are a way to present resident preferences in an objective way that facilitates conversation about preferences and maximizes adherence, but family members and staff may not view a lengthy video. In addition, bias and misrepresentation of resident wishes can be introduced through the editing process. To minimize potential bias we consulted our advisory panel about the interview questions and editing process. On average, raw footage videos were 55 minutes and edited to 17 minutes. We utilized qualitative methods (e.g. viewing videos in entirety, directed coding, member checks) to develop a systematic, 3-step video editing process to maintain the resident’s voice. In Step 1 we viewed each video in its entirety. Step 2: We evaluated each video for redundancy, relevancy, and context using our novel flowchart of comparison and consensus codes. Step 3 consisted of having the resident view the edited video and provide feedback. Our procedure demonstrates a systematic process which illustrates how employing qualitative methods facilitated the production of a video that maintained the resident’s voice and is time-sensitive to those who view it in long-term care settings.