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The center-satellite system for the wide-scale distribution of genetic counseling services.

机译:广泛用于遗传咨询服务的卫星中心系统。

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摘要

A 6-year experience with a center-satellite system for the provision of comprehensive genetic counseling services to a large geographical area is described. A series of 12 satellite genetic clinics established throughout northern and central California have brought genetic counseling services to within a 2-hour drive for most patients. These satellite clinics are largely organized by local groups (such as National Foundation-March of Dimes chapters and county health departments) but are backed by the personnel and resources of the center at the University of California, San Francisco. Assistance is generally provided by county public health nurses who collect medical records from referring physicians and pedigrees from the family. Specimens for cytogenetic or special biochemical studies are brought back to the center, but, if possible, other laboratory determinations, radiological investigations, and specialty consultations are obtained locally. Follow-up counseling may be provided by the public health nurses, and a written summary is sent to each patient or family. The socioeconomic spectrum of the patients seen at the satellite clinics is much broader than at the central clinic, and the establishment of a satellite clinic results in a great increase in the number of cases seen from the area in which it is located. Physician time per patient and cost of services per patient are substantially the same in both central and satellite clinics. Based on population figures applicable to the state of California, it is estimated that approximately 60-70 comprehensive counseling centers, each with up to 15 satellites, could adequately provide for the foreseeable genetic counseling needs of the United States.
机译:描述了在中央卫星系统上为大型地理区域提供全面遗传咨询服务的6年经验。在整个加利福尼亚北部和中部建立的一系列12家卫星遗传诊所已为大多数患者提供了2小时车程内的遗传咨询服务。这些卫星诊所主要由当地团体(例如,国家基金会-迪姆斯三月分会和县卫生部门)组织,但得到了加利福尼亚大学旧金山分校中心人员和资源的支持。通常由县公共卫生护士提供帮助,他们从转诊医生那里收集病历和家谱。细胞遗传学或特殊生化研究的标本被带回中心,但如果可能的话,其他的实验室测定,放射学检查和专科咨询可在当地获得。公共卫生护士可以提供跟进咨询,并向每个患者或家庭发送书面摘要。在附属诊所看病人的社会经济范围比在中央诊所要广得多,附属诊所的建立导致从其所在地区看到的病例数量大大增加。中心诊所和附属诊所的每位患者的医师时间和每位患者的服务成本基本相同。根据适用于加利福尼亚州的人口数据,估计大约有60-70个综合咨询中心,每个中心最多可容纳15颗卫星,可以充分满足美国可预见的遗传咨询需求。

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