Diabetes IN develOpment (DINO): the bio-psychosocial family functioning and parental well-being of youth with type 1 diabetes: a longitudinal cohort study design

摘要

BackgroundStrict glycemic control during adolescence decreases the risk of developing complications later in life, even if this level of control is not maintained afterwards. However, the majority of adolescents with type 1 diabetes (T1D) are in poor control and so far medical or psychological interventions have shown limited success. Adolescence is characterized by major biological, psychosocial, cognitive and parent–child relationship changes and the complex interaction between these developmental trajectories, and its impact on health outcomes is still poorly understood. A specific topic of interest in this context is the timing of diagnosis. The longitudinal study DINO (Diabetes IN develOpment) aims to examine: class="enumerated" style="list-style-type:decimal">If and how the onset of T1D before vs. during puberty results in different outcomes of glycemic control, self-management, psychological functioning and diabetes-related quality of life.The timing of onset of disturbed eating behavior, its risk factors and its prospective course in relation to glycemic and psychological consequences.If and how the onset of T1D before vs. during puberty results in different family functioning and parental well-being.If and how the cognitive development of youth with T1D relates to glycemic control and diabetes self-management.