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Digital health and the biopolitics of the Quantified Self

机译:数字健康与量化自我的生物政治

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摘要

Recent years have witnessed an intensive growth of systems of measurement and an increasing integration of data processes into various spheres of everyday life. From smartphone apps that measure our activity and sleep, to digital devices that monitor our health and performance at the workplace, the culture of measurement is currently on the rise. Encouraged by movements such as the Quantified Self, whose motto is ‘self knowledge through numbers’, a growing number of people across the globe are embracing practices of self-quantification and tracking in the spirit of improving their wellbeing and productivity or charting their fitness progress. In this article, I examine the biopolitical aspects of the Quantified Self practices, exploring some of the ideologies and rationalities underlying self-tracking culture. I argue that such practices represent an instantiation of a ‘biopolitics of the self’ whereby the body is made amenable to management and monitoring techniques that often echo the ethos of neoliberalism. Rather than being restricted to an individualized form, self-tracking practices are also becoming part of a biosocial and communal phenomenon in which individuals are incited to share with others information about their physical activities and biodata. In exploring some examples of this data sharing culture, I critically address the extent to which the sharing of personal physical data can be seen as a ‘solidaristic’ act that can contribute to a larger Big Data ecosystem and inform the wider medical community and healthcare research and policy. I link this discussion to debates on ‘data philanthropy’, highlighting the emerging tension between philanthropic discourses of data sharing and issues of privacy. From here, I go on to discuss further ethical and political concerns, particularly in relation to data security and the marked shifts in healthcare responsibilities.
机译:近年来,测量系统迅猛发展,数据处理日益融入日常生活的各个领域。从测量我们的活动和睡眠的智能手机应用程序,到监视我们在工作场所的健康和绩效的数字设备,测量文化目前正在兴起。在诸如“量化自我”(Qualified Self)之类的运动的鼓舞下,其座右铭是“通过数字实现自我知识”,全球越来越多的人奉行自我量化和跟踪的实践,本着改善他们的健康和生产力或绘制其健身进度的精神。在本文中,我研究了量化自我实践的生物政治方面,探讨了自我跟踪文化背后的一些意识形态和理性。我认为,这种做法代表了“自我的生物政治”的实例,在这种情况下,人们的身体可以适应经常与新自由主义精神相呼应的管理和监督技术。自我跟踪行为不仅限于个体化形式,还成为生物社会和公共现象的一部分,在这种现象中,人们被激发与他人分享有关其身体活动和生物数据的信息。在探讨这种数据共享文化的一些示例时,我严格地讨论了个人物理数据共享在多大程度上可以被视为“团结”行为,可以为更大的大数据生态系统做出贡献,并为更广泛的医学界和医疗保健研究提供信息和政策。我将此讨论与有关“数据慈善”的辩论联系起来,强调了数据共享的慈善话语与隐私问题之间正在出现的紧张关系。在这里,我继续讨论更多的道德和政治问题,尤其是在数据安全性和医疗保健责任的显着变化方面。

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