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Genetic Testing between Private and Public Interests: Some Legal and Ethical Reflections

机译:私人利益与公共利益之间的基因测试:一些法律和伦理思考

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摘要

In Europe, there is a wide variety of genetic tests that various private companies offer to patients or to consumers. More and more people have become curious about their genetic predisposition and susceptibility. Most public health-care systems, however, are not adequately prepared for responding to these new demands and to the results of these genetic tests as, quite often, there is no available therapy for the identified genetic condition. This discrepancy between the newly emerging expectations and the insufficient responses contributes to a further rift between the public and private sectors of health care. Individual genetic test results may also trigger the need for personalized medicine and may open up a competition between the two fields in offering further genetic tests and medical exams. Pro-active patients may need a different kind of information on genetic tests and their implications. In this context, how should the public health system deal with the challenges of private testing? Will private genetic testing transform health care from a solidarity-based system to an individualistic one? In this paper, I would like to explore the emerging legal and ethical issues related to genetic testing and the relevant legal framework that has developed so far. In the conclusion, I will examine the possibilities of further legal development.
机译:在欧洲,各种私营公司为患者或消费者提供了各种各样的基因检测。越来越多的人对其遗传易感性和易感性感到好奇。但是,大多数公共卫生保健系统没有充分准备好应对这些新的需求和这些基因检测的结果,因为很多时候,对于确定的遗传状况没有可用的疗法。新近出现的期望与反应不足之间的这种差异进一步加剧了公共和私营医疗部门之间的分歧。个别的基因测试结果也可能触发对个性化医学的需求,并可能在提供进一步的基因测试和医学检查方面在两个领域之间展开竞争。积极主动的患者可能需要有关基因检测及其含义的其他信息。在这种情况下,公共卫生系统应如何应对私人检测的挑战?私人基因检测会否将医疗保健从基于团结的系统转变为个人主义系统?在本文中,我想探讨与基因检测有关的新出现的法律和道德问题,以及迄今为止发展的相关法律框架。最后,我将研究进一步法律发展的可能性。

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