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The Impact of Age-Related Macular Degeneration on Quality of Life and ItsAssociation With Demographic Data: Results From the NEI VFQ-25 Questionnaire in aNorwegian Population

机译:与年龄有关的黄斑变性对生活质量的影响及其与人口统计数据的关联:NEI VFQ-25问卷调查结果挪威人口

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摘要

>Objective: To describe vision-related quality of life (VRQoL) in a Norwegian population of patients with newly diagnosed neovascular age-related macular degeneration (nAMD), and to evaluate the association with demographic data of age, gender, and civil status (married, cohabitants/unmarried, not cohabitants). >Method: The Norwegian version of the National Eye Institute Visual Functioning Questionnaire–25 (NEI VFQ-25) questionnaire was administered to 145 patients recently diagnosed with nAMD. We used descriptive statistics and bivariate analysis to determine the distribution of demographic parameters and a possible association between demographic parameters and NEI VFQ-25 scores. Spearman correlation was employed to analyze the NEI VFQ-25 items and subscales scores. >Results: Mean (SD) VFQ-25 total score was 78.5 (14.7). The scores per subscales varied from 64.7 to 89.7. No significant difference was revealed between demographic parameters and the NEI VFQ-25 items, except for one item (being with others) when comparing paired and nonpaired participants. >Conclusion: In a Norwegian population with newly diagnosed nAMD, VRQoL is reported at a high baseline level. This is an important information for the health care personnel when discussing expectations during treatment with the patient. Age, gender, and civil status did not affect VRQoL.
机译:>目的:描述挪威新诊断为血管新生相关性黄斑变性(nAMD)的挪威人群的视力相关生活质量(VRQoL),并评估其与年龄人口统计数据的关系,性别和公民身份(已婚,同居/未婚,而非同居)。 >方法:对145名最近被诊断出患有nAMD的患者进行了挪威版的《国家眼科研究所视觉功能调查问卷–25》(NEI VFQ-25)问卷调查。我们使用描述性统计和双变量分析来确定人口统计学参数的分布以及人口统计学参数与NEI VFQ-25得分之间的可能关联。 Spearman相关性用于分析NEI VFQ-25项目和子量表得分。 >结果:平均值(SD)VFQ-25总分为78.5(14.7)。每个分量表的分数从64.7到89.7不等。比较配对和非配对参与者时,除了一项(与其他项在一起)外,人口统计学参数与NEI VFQ-25项之间没有显着差异。 >结论:在挪威新诊断为nAMD的人群中,VRQoL的基线水平较高。当与患者讨论治疗期间的期望时,这对于医疗保健人员而言是重要的信息。年龄,性别和公民身份不影响VRQoL。

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