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Caring Situation and Provision of Web-based Support for Young Persons Who Support Family Members or Close Friends with Mental Illness

机译:为支持家庭成员或有心理疾病的亲密朋友的年轻人提供关怀和提供网络支持

摘要

Changes in psychiatric health care and increased reliance on outpatient care have resulted inthe transfer of responsibility for care from psychiatric services to social networks. Youngperson’s therefore often take responsibility during their own sensitive phase of emergingadulthood for the care of a loved one who suffers from mental illness.The overall aim of this study was to learn how young persons who provide care and support toa person with mental illness handle their everyday lives. This study also aimed to evaluateweb-based versus folder support for these young informal carers. The papers in this thesis usequalitative descriptive (I), comparative (II), mixed methods (III), and experimental (IV)design approaches. Participants were recruited twice: first, 12 participants were recruited forthe qualitative papers and interviewed; then 241 participants were included in theinterventions and sent self-administered questionnaires by email or the regular postal serviceat the start of the intervention (T1), after 4 months (T2), and after 8 months (T3) during 2010and 2011. Young informal carers (YIC) managed their everyday lives and unexpectedstressors from their perceived responsibility for the supported person by relying on their ownabilities and their social networks and by maintaining a constant state of readiness in casesomething should happen to the supported person. Supporting a person in the family can havehigher positive subjective value than supporting a friend. Although friends perceived that theyreceived more support. They often did not share their situation with others and felt that othersdid not understand what they were going through; even when YIC did share their burden withtheir social networks, they felt either that they were ignored or that others did not know howto act or what to say. YIC often experienced a lack of appropriate, available, and seriousprofessional support. They thought that support from professionals might improve their caringsituation and that it might ease their burden if the person with mental illness had moreprofessional care and support.Baseline stress levels were high in both intervention groups (web-based support versusinformational folder), but decreased in the folder group. The folder group showed moreimprovement in their caring situation than the web group, and improvements in general selfefficacy,well-being, and quality of life. The web group also showed improved well-being.Non-significant differences between the groups indicate that each intervention could be usefuldepending upon the individual’s preference. This highlights the importance of adopting aperson-centred approach to offer young persons the appropriate support.
机译:精神卫生保健的变化以及对门诊服务的日益依赖,导致了护理责任从精神病服务转移到了社交网络。因此,年轻人经常在自己成年后的敏感阶段对照顾患有精神疾病的亲人承担责任。本研究的总体目的是了解为精神疾病患者提供照顾和支持的年轻人如何处理他们的日常事务。生活。这项研究还旨在评估这些年轻的非正式护理人员基于网络的支持与文件夹支持。本论文采用定性描述性方法(I),比较方法(II),混合方法(III)和实验方法(IV)。参与者被招募了两次:首先,招募12名参与者进行定性论文并接受采访;然后有241名参与者参加了干预措施,并在干预开始(T1),4个月(T2)和8个月(T3)之后于2010年和2011年通过电子邮件或定期邮政服务发送了自我管理的调查问卷。 (YIC)通过感知自己对被扶养人的责任来管理自己的日常生活和意料之外的压力,他们依靠自己的能力和社交网络,并保持恒定的准备状态,以防被扶养人发生某些事情。支持家人比支持朋友具有更高的积极主观价值。尽管朋友认为他们得到了更多的支持。他们常常不与他人分享自己的处境,并感到他人不了解自己正在经历的事情。即使YIC确实与他们的社交网络分担了负担,他们还是感到自己被忽略了,或者其他人不知道该怎么做或怎么说。 YIC经常缺乏适当,可用和认真的专业支持。他们认为,专业人士的支持可能会改善他们的工作环境,如果精神病患者获得更多的专业护理和支持,可能会减轻他们的负担。两个干预组的基线压力水平都很高(基于网络的支持与信息文件夹),但在文件夹组。与网络小组相比,文件夹小组的护理状况得到了改善,并且总体自我效能,幸福感和生活质量得到了改善。网络小组的生活也得到了改善。小组之间的无显着差异表明,根据个人的喜好,每种干预措施都可能有用。这突出了采用以人为本的方法向年轻人提供适当支持的重要性。

著录项

  • 作者

    Ali Lilas;

  • 作者单位
  • 年度 2013
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  • 原文格式 PDF
  • 正文语种 eng
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