Objective: Cystic adenomatoid malformations (CCAM) are relatively rare developmental abnormalities of the lung. Despite outcome is usually benign, parents often exhibit high anxiety level. The purpose of the present study was to collect parents’subjective experience of communication of diagnosis when expecting a fetus with CCAM.udMethods: In the period ranging between 2004 to 2007 all couples referred to our hospital for prenatal suspicion of CCAM, were contacted to participate in the study by means of a questionnaire.udResults: Twenty-seven couples returned fully completed questionnaire and form the object of this study. 13/27 couples were recommended pregnancy termination. Major risks presented were: fetal distress (27/27), intrauterine death (16/27), death at birthud(12/27). The most distressing moments were: communication of diagnosis and the time lag between communication of diagnosis and consultation with the surgeon.udConclusions: Despite CCAM carries a favourable prognosis, couples often appear to receive incomplete information with risk of fetal distress and demise prevailing over survival rate and long term outcome. To provide the couple with the most accurate information concerning the anomaly and the associated prognosis to make informed decision a referral to a tertiary pediatric surgery unit should be made as soon as possible.
展开▼
机译:Litchfield心理咨询模型以哲学为基础,将精神健康服务应用程序Lift Up UP,旨在提供简单,实用的建议,以帮助个人和员工应对日常的精神健康挑战,并将用户与现有的精神健康专业人员联系起来。 Lift me UP将使用先进的技术来:•协助患者评估过程•监控和支持日常工作•将用户推荐给可用的心理健康专家•与市场上的任何产品相比,创造独特的定制体验。