The caring reality of family carers: an exploration of the health status of family carers of people with Parkinson’s disease

摘要

The contribution made by Family Carers is crucial in enabling sick, disabled and older people to remain in the home. However, many Carers are forced to provide care to family members while being inadequately supported in their role. This research sought to develop a greater understanding of the health status of Family Carers in Ireland. A random sample of 20 Family Carers of people with Parkinson’s disease participated in a series of qualitative semi-structured interviews.udIt was found that the role of the Family Carer was both physically and emotionally demanding, particularly as the person’s condition deteriorated and the caring needs intensified. Providing care had powerful physical impacts with significant changes to daily routines noted. High blood pressure, tiredness, lack of physical energy, back problems and arthritis were seen as consequences of caring. As a result of the physical demands of caring, feelings of loneliness, anxiety and depression were all expressed. Providing care also resulted in significant limitations to personal interests and hobbies.udCurrent periods of respite and state provided home care support were viewed as inadequate by many. Experiences of support from healthcare professionals differed greatly. Family members’ support had an important social inclusion aspect. Current levels of financial assistance were seen as insufficient in meeting the needs of Family Carers. Support received by various non-government organisations (NGOs) was seen as highly beneficial. However, joint support meetings for both Family Carer and care recipient were also problematic. A training programme for Family Carers was singled out as a crucial intervention that would assist Family Carers in building up the necessary physical and emotional skills for providing care to a person with Parkinson’s disease, thus impacting positively on their health status.