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The effects of parental illness and other ill family members on youth caregiving experiences

机译:父母疾病和其他患病家庭成员对青年看护经历的影响

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摘要

Informed by a model of family role-redistribution derived from the Family Ecology Framework (Pedersen & Revenson, 2005), this study examined differences in two proposed psychological components of role-redistribution (youth caregiving experiences and responsibilities) between youth of a parent with illness and their peers from ‘healthy’ families controlling for the effects of whether a parent is ill or some other family member, illness type, and demographics. Based on self-report questionnaire data, four groups of Australian children were derived from a community sample of 2474youth (‘healthy’ family, n=1768; parental illness, n=336; other family member illness, n=254; both parental and other family member illness, n=116). The presence of any family member with a serious illness is associated with an intensification of youth caregiving experiences relative to peers from healthy families. This risk is elevated if the ill family member is a parent, if more illnesses are present, and by certain youth and family demographics, and especially by higher caregiving responsibilities. The presence of a family member, particularly a parent, with a serious medical condition has pervasive increased effects on youth caregiving compared to healthy families, and these effects are not fully accounted for by illness type, demographics or caregiving responsibilities.
机译:由家庭生态学框架(Pedersen&Revenson,2005)得出的家庭角色重新分配模型的通知,本研究考察了患病父母的青少年之间角色重新分配的两个建议心理成分(青年护理经验和责任)的差异。以及来自“健康”家庭的同伴,控制父母是否生病或其他家庭成员,疾病类型和人口统计信息的影响。根据自我报告调查表数据,四组澳大利亚儿童来自2474youth社区样本(“健康”家庭,n = 1768;父母病,n = 336;其他家庭成员病,n = 254;父母和孩子)其他家庭成员疾病,n = 116)。与来自健康家庭的同龄人相比,任何患有严重疾病的家庭成员的存在都与青年看护经验的增加有关。如果患病的家庭成员是父母,如果存在更多的疾病,并且某些青年和家庭人口统计数据,尤其是更高的照护责任,则这种风险会增加。与健康家庭相比,患有严重疾病的家庭成员,特别是父母的存在,对青年护理的影响普遍增加,并且这些疾病并未完全按疾病类型,人口统计学或护理责任来解释。

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