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Researching the lived experiences of cancer patients with malignant fungating wounds

机译:研究恶性真菌性伤口癌患者的生活经历

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摘要

Background: Researching the experiences of terminally ill patients with disfiguring wounds is likely to be a challenge anywhere, and this investigation came face-to-face with different attitudes on the part of both patients and nurses and doctors in England (the South-East) and Italy (Tuscany). Aim: To highlight the complexity of researching sensitive subjects and the difficulties encountered from the perspective of the researcher(s). Methods: Fourteen patients were interviewed. In England access was relatively straightforward, with nurses linked to the hospice doing most of the recruitment. Access was more difficult in Italy, with some doctors expressing opposition. Discussion: How ethical is it to treat dying patients as subjects for research? How does research of this kind vary from one culture to another? Conclusions: Interviewees can find it therapeutic to talk about their experiences to a sympathetic listener ― although the listening does pose a considerable strain on the researcher.
机译:背景:研究在肢体创伤中处于绝症的患者的经历在任何地方都可能是一个挑战,并且这项研究以英格兰(东南部)的患者以及护士和医生的不同态度面对面和意大利(托斯卡纳)。目的:从研究者的角度突出研究敏感主题的复杂性和遇到的困难。方法:对14例患者进行了访谈。在英格兰,接诊相对简单,大部分招聘工作都由与临终关怀相关的护士负责。在意大利,准入更为困难,一些医生表示反对。讨论:将垂死的患者作为研究对象是什么伦理?从一种文化到另一种文化,这种研究如何变化?结论:受访者可以向有同情心的听众讲述自己的经历,这对治疗是有帮助的-尽管聆听确实对研究人员造成了很大的压力。

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