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A pilot study on the effects of the transition of paediatric to adult health care in patients with haemophilia and in their parents:patient and parent worries, parental illness-related distress and health-related Quality of Life

机译：血友病患者及其父母从儿科向成人医疗过渡的影响的初步研究：患者和父母的担忧，与父母疾病相关的困扰和与健康相关的生活质量

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Geerts E.; van de Wiel H.; Tamminga R.;
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年度 2008
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正文语种 eng
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1. A pilot study on the effects of the transition of paediatric to adult health care in patients with haemophilia and in their parents: patient and parent worries, parental illness-related distress and health-related Quality of Life. [J] . Geerts E, van-de-Wiel H, Tamminga R Haemophilia: the official journal of the World Federation of Hemophilia . 2008,第5期

机译：一项针对血友病患者及其父母的儿科向成人医疗过渡的影响的初步研究：患者和父母的担忧，与父母疾病相关的困扰以及与健康相关的生活质量。
2. The Transition Off Treatment for Paediatric Cancer: The Role of Neurocognitive Difficulties in Patient Health-Related Quality of Life, Patient and Parent Distress and Family Functioning [J] . Barakat L., NeMoyer A., Ding K., Pediatric blood & cancer . 2016,第Suppla3期

机译：小儿癌症的过渡治疗：神经认知困难在患者健康相关的生活质量，患者和父母的困扰以及家庭功能中的作用
3. Negative effects of diabetes–related distress on health-related quality of life: an evaluation among the adult patients with type 2 diabetes mellitus in three primary healthcare clinics in Malaysia [J] . Boon-How Chew, Sherina Mohd-Sidik, Sazlina Shariff-Ghazali Health and Quality of Life Outcomes . 2015,第1期

机译：与糖尿病相关痛苦对健康相关生活质量的负面影响：在马来西亚三次初级医疗诊所的2型糖尿病成年患者的评估
4. Effects of Adult Patient Portals on Patient Empowerment and Health-Related Outcomes: A Systematic Review [C] . Elske Ammenwerth, Alexer Hoerbst, Stefanie Lannig, MEDINFO . 2019

机译：成人患者门户对患者赋权与健康相关结果的影响：系统审查
5. Assessment of Health-Related Quality of Life, Patient-Reported Mental Health Status and Psychological Distress based on the Type of Pharmacotherapy used Among Patients with Depression. [D] . Shah, Drishti. 2015

机译：根据抑郁症患者使用的药物治疗类型，评估与健康有关的生活质量，患者报告的心理健康状况和心理困扰。
6. Patient and parent perspectives on transition from paediatric to adult healthcare in rheumatic diseases: an interview study [O] . Ivy Jiang, Gabor Major, Davinder Singh-Grewal, 2021

机译：患者和父母视角于从儿科到风湿病中的成人医疗保健的转型：采访研究
7. A pilot study on the effects of the transition of paediatric to adult health care in patients with haemophilia and in their parents: patient and parent worries, parental illness-related distress and health-related Quality of Life [O] . Geerts, E., van de Wiel, H., Tamminga, R. 2008

机译：对血友病患者及其父母的儿科向成人医疗过渡的影响的一项初步研究：患者和父母的担忧，与父母疾病相关的困扰和与健康相关的生活质量

A pilot study on the effects of the transition of paediatric to adult health care in patients with haemophilia and in their parents:patient and parent worries, parental illness-related distress and health-related Quality of Life

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