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How a motivation programme can affect complex treatment compliance in a rare disease? Results of a questionnaire-based, self-reported study to evaluate “Life Club CF”, a programme intended for patients with cystic fibrosis

机译：动机计划如何影响罕见病的复杂治疗依从性？一项基于问卷的自我报告研究的结果，用于评估“ Life Club CF”计划，该计划旨在囊性纤维化患者

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Marcin Mikos; Mikolaj Krzyzanowski; Wojciech Cichy; Pawel Wojtowicz; Anna Sandurska;
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1. How a motivation programme can affect complex treatment compliance in a rare disease? Results of a questionnaire-based, self-reported study to evaluate “Life Club CF”, a programme intended for patients with cystic fibrosis [J] . Marcin Mikos, Mikolaj Krzyzanowski, Wojciech Cichy, Orphanet journal of rare diseases . 2010,第S1期

机译：动机计划如何影响罕见病的复杂治疗依从性？一项基于问卷的自我报告研究的结果，用于评估“ Life Club CF”计划，该计划旨在囊性纤维化患者
2. Effects of a partially supervised conditioning programme in cystic fibrosis: an international multi-centre randomised controlled trial (ACTIVATE-CF): study protocol [J] . Helge Hebestreit, Larry C. Lands, Nancy Alarie, BMC Pulmonary Medicine . 2018,第1期

机译：部分监督的调节程序在囊性纤维化中的作用：一项国际多中心随机对照试验（ACTIVATE-CF）：研究方案
3. Patient’s perception of the meaning of life in cystic fibrosis – its evaluation with respect to the stage of the disease and treatment [J] . Gra?yna Cepuch, Gra?yna D?bska, Lidia Pawlik, Post?py Higieny i Medycyny Do?wiadczalnej . 2012,第Suppla1期

机译：患者对囊性纤维化中生命意义的理解–对疾病和治疗阶段的评估
4. How a motivation programme can affect complex treatment compliance in a rare disease? Results of a questionnaire-based self-reported study to evaluate Life Club CF a programme intended for patients with cystic fibrosis [O] . Marcin Mikos, Mikolaj Krzyzanowski, Wojciech Cichy, 2010

机译：动机计划如何影响罕见病的复杂治疗依从性？一项基于问卷的自我报告研究的结果用于评估 Life Club CF计划该计划旨在囊性纤维化患者
5. How a motivation programme can affect complex treatment compliance in a rare disease? Results of a questionnaire-based, self-reported study to evaluate “Life Club CF”, a programme intended for patients with cystic fibrosis [O] . Mikos, Marcin, Krzyzanowski, Mikolaj, Cichy, Wojciech, 2010

机译：动机计划如何影响罕见病的复杂治疗依从性？一项基于问卷的自我报告研究的结果，用于评估“ Life Club CF”计划，该计划旨在囊性纤维化患者

How a motivation programme can affect complex treatment compliance in a rare disease? Results of a questionnaire-based, self-reported study to evaluate “Life Club CF”, a programme intended for patients with cystic fibrosis

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