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An exploration of resilience in families with a child diagnosed with an Autism spectrum disorder

机译:对患有自闭症谱系障碍的孩子的家庭进行复原力的探索

摘要

The purpose of this qualitative research study was to explore how families withudchildren with an Autism Spectrum Disorder (ASD) were able to move through theudadverse situation that they face while raising a child with significant developmental needsudand challenges. The theoretical framework that guided this phenomenological researchudwas family resilience. The research participants included 14 parents of at least one childudwith an ASD. The age range of the participants ranged from 30 to 65, and they alludresided in a large metropolitan area. A face-to-face interview was conducted with each ofudthe participants in their own home or in a private setting. Participants were asked oneudquestion: Please tell me about your experience of raising a child with an ASD. Theudinterviews were audiotaped, transcribed verbatim, and analyzed to determine themes.udEight themes emerged: (a) balancing life around the child with ASD; (b)udremaining watchful and alert; (c) reaching a point of acceptance; (d) dealing withudjudgment; (e) gaining support; (t) relying on spirituality and faith; (g) learning to laugh;udand (h) celebrating small successes. Conclusions, implications, and recommendations forudfuture studies were reported in an effort to aid family therapists, school staff, and otherududmental health professionals in providing supports and resources to families with childrenudwith ASD.
机译:这项定性研究的目的是探讨患有自闭症谱系障碍(ASD)的儿童 /他们的家庭如何能够克服他们所面临的 dadverse情况,同时抚养一个有重大发展需求 udand挑战的孩子。指导这一现象学研究的理论框架是家庭的适应力。研究参与者包括14名至少1名患有自闭症儿童的父母。参与者的年龄范围在30到65岁之间,他们都居住在一个大都市地区。对每个参与者在自己家里或私人环境中进行了面对面的采访。参与者被问到一个疑问:请告诉我您抚养一个患有ASD的孩子的经历。 ud访谈进行了录音,逐字记录和分析,以确定主题。 ud出现了八个主题:(a)使儿童周围的生活与ASD保持平衡; (b)保持注意和警惕; (c)达到接受点; (d)处理判决; (e)获得支持; (t)依靠灵性和信仰; (g)学习笑; udand(h)庆祝成功。报告了对未来研究的结论,影响和建议,以帮助家庭治疗师,学校工作人员和其他对udmental卫生的专业人员来为有ASD的儿童家庭提供支持和资源。

著录项

  • 作者

    DuPont Michael;

  • 作者单位
  • 年度 2009
  • 总页数
  • 原文格式 PDF
  • 正文语种 en_US
  • 中图分类
  • 入库时间 2022-08-20 20:20:21

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