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Rare disease specialists and clinical pharmacologists unite: Increase collection of longitudinal data!

机译：罕见的疾病专家和临床药理学家联合：增加纵向数据的收集！

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Gijs W.E. Santen; Adam F. Cohen;
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1. Rare disease specialists and clinical pharmacologists unite: Increase collection of longitudinal data! [J] . Santen Gijs W.E., Cohen Adam F. British Journal of Clinical Pharmacology . 2019,第11期

机译：罕见的疾病专家和临床药理学家联合：增加纵向数据的收集！
2. Vaccine centres unite specialists in the battle against infectious diseases. [J] . GershonD Nature . 2000,第6813期

机译：疫苗中心联合专家应对传染病。
3. SUPPRESSION OF RENIN-ANGIOTENSIN SYSTEM TO PREVENT COMPLICATIONS OF CARDIOVASCULAR DISEASES: CURRENT "ROLES" DISTRIBUTION FROM CLINICAL PHARMACOLOGIST’S POINT OF VIEW [J] . S. R. Gilyarevskiy, V. A. Orlov, M. V. Golshmid, Racional?naa Farmakoterapia v Kardiologii . 2011,第1期

机译：抑制肾素 - 血管紧张素系统，以防止心血管疾病并发症：目前来自临床药理学生的观点分布
4. The Use of Gamification Techniques in a Clinical Setting for the Collection of Longitudinal Kinematic Data [C] . Andrew Ennis, Ian Cleland, Chris Nugent, International conference on ubiquitous computing and ambient intelligence . 2016

机译：游戏化技术在临床环境中用于收集纵向运动数据的用途
5. Imputation based methods for incidence rate estimation of rare diseases from federal and state mortality data supplemented with disease registry data [D] . Jalal, Kabir 2015

机译：基于归因法的联邦和州死亡率数据与疾病登记数据相结合的罕见病发病率估算方法
6. Rare disease specialists and clinical pharmacologists unite: Increase collection of longitudinal data! [O] . Gijs W.E. Santen, Adam F. Cohen 2019

机译：罕见的疾病专家和临床药理学家联合：增加纵向数据的收集！
7. La Cartella Clinica Informatizzata nel percorso diagnostico-assistenziale del Malato Raro: sviluppo e implementazione di un sistema di raccolta e analisi dell'informazione clinica fenotipica e genotipica. Computerized Medical Record in the diagnostic-care of the Rare Diseases: development and implementation of a system for the collection and analysis of clinical phenotypic and genotypic data [O] . Festa Ilaria 2016

机译：罕见患者的诊断护理路径中的计算机化临床记录：开发和实施用于收集和分析表型和基因型临床信息的系统。罕见病诊断护理中的计算机病历：开发和实施用于收集和分析临床表型和基因型数据的系统
8. Von Hippel-Lindau Disease: A Rare Familiar Multi-System Disorder and the Impactof the Clinical Nurse Specialist [R] . McNeill, M. M. 1993

机译：Von Hippel-Lindau病：罕见的多系统疾病和临床护理专家的影响

Rare disease specialists and clinical pharmacologists unite: Increase collection of longitudinal data!

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