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‘Staying strong on the inside and outside’ to keep walking and moving around: Perspectives from Aboriginal people with Machado Joseph Disease and their families from the Groote Eylandt Archipelago, Australia

机译：'在内部和外面保持强大'，以继续走路和四处走动：来自土着人与Machado Joseph疾病的观点和他们的家人来自Groote Eylandt群岛，澳大利亚

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Jennifer J. Carr; Joyce Lalara; Gayangwa Lalara; Gloria O’Hare; Libby Massey; Nick Kenny; Kate E. Pope; Alan R. Clough; Anne Lowell; Ruth N. Barker;
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1. Machado-Joseph Disease in the context of the person/family that experiences it: daily changes and future expectations Doen?a de Machado-Joseph no contexto da pessoa/família que a vivencia: altera??es cotidianas e expectativas futuras [J] . Micheli Vieira Della Giustina, Mara Glarete Rodrigues Marinho, Claudia Zamberlan, Revista de Pesquisa: Cuidado é Fundamental Online . 2017,第4期

机译：Machado-Joseph疾病在体验它的人/家庭的背景下：日常变化和未来期望Doen de Machado-joseph在经历的人/家庭的背景下：每天的修正和未来的期望
2. Disease Knowledge and Attitudes toward Predictive Testing and Prenatal Diagnosis in Families with Machado-Joseph Disease from the Azores Islands (Portugal) [J] . M. Lima, T. Kay, J. Vasconcelos, Community genetics . 2001,第1期

机译：亚速尔群岛（葡萄牙）患有马查多·约瑟夫病的家庭的疾病知识以及对预测测试和产前诊断的态度
3. Yemenite-Jewish families with Machado-Joseph disease (MJD/SCA3) share a recent common ancestor [J] . Sharony Reuven, Martins Sandra, Costa Ines P. D., European journal of human genetics: EJHG . 2019,第11期

机译：Yemenite-Jewish Machado-Joseph病（MJD / SCA3）分享最近的常见祖先
4. ‘Staying strong on the inside and outside’ to keep walking and moving around: Perspectives from Aboriginal people with Machado Joseph Disease and their families from the Groote Eylandt Archipelago Australia [O] . Jennifer J. Carr, Joyce Lalara, Gayangwa Lalara, -1

机译：在内部和外部保持坚强以保持行走和四处走动：澳大利亚马查多·约瑟夫病土著居民及其家人的观点
5. What is the best way to keep walking and moving around for individuals with Machado-Joseph disease? A scoping review through the lens of Aboriginal families with Machado-Joseph disease in the Top End of Australia [O] . Jennifer J Carr, Joyce Lalara, Gayangwa Lalara, 2019

机译：伴随着Machado-Joseph疾病的个人的最佳方式是什么？通过在澳大利亚顶端的土着家族镜片镜片通过土着家族镜片进行审查

‘Staying strong on the inside and outside’ to keep walking and moving around: Perspectives from Aboriginal people with Machado Joseph Disease and their families from the Groote Eylandt Archipelago, Australia

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