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Erythromelalgia? A Clinical Study of People Who Experience Red, Hot, Painful Feet in the Community

机译:红斑狼疮?在社区体验红色,热,痛苦的脚的人的临床研究

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摘要

We recruited a population of people who clinically suffer from the symptoms of erythromelalgia, red, hot, painful feet made worse by heat and improved by cooling, to better characterise this population and measure their quality of life (QOL). Ninety-two individuals completed the QOL surveys, and 56 individuals were clinically assessed. There was a 3 : 1 ratio of females to males with an average age of 61 years. The estimated prevalence of people who had clinical symptoms of erythromelalgia in the Dunedin community was 15/100,000. Only 27% of people had received a diagnosis for their symptoms despite seeking medical attention. People in the study population had worse quality of life than the general New Zealand population (P<0.001). In the majority of participants symptoms had a mild-moderate effect on their quality of life. The results of this study indicate that the number of people who have clinical symptoms of erythromelalgia is much greater than is commonly accepted and that the majority of these individuals go unrecognised by the medical profession despite seeking help. They have significantly diminished QOL with the majority of people having mild-to-moderate symptoms.
机译:我们招募了一群临床患有红斑症状,红色,热,疼痛的脚症状,通过热量而变得更糟,通过冷却改善,更好地表征了这一人口并衡量其生活质量(QOL)。九十二个人完成了QOL调查,临床评估了56人。女性与平均年龄为61岁的男性的3:1比例。在达尼丁社区中患有红细胞癌的临床症状的人的估计患病率为15 / 100,000。尽管寻求医疗注意,只有27%的人已经收到了症状的诊断。学习人口中的人们的生活质量更差而不是新西兰人口(P <0.001)。在大多数参与者中,症状对他们的生活质量有轻微 - 中度。本研究的结果表明,患有红细胞的临床症状的人数远远大得多是普遍接受的,并且尽管寻求帮助,但这些人的大多数人都无法识别医学专业。它们具有明显减少的QOL,大多数人患有轻度至中度症状。

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