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Health-related quality of life in children with sickle cell disease: A report from the Comprehensive Sickle Cell Centers Clinical Trial Consortium

机译：患有镰状细胞病的儿童的健康状生活质量：综合镰状细胞中心临床试验联盟的报告

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Carlton Dampier; Susan Lieff; Petra LeBeau; Seungshin Rhee; Marsha McMurray; Zora Rogers; Kim Smith-Whitley; Winfred Wang;
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1. Health-related quality of life in children with sickle cell disease: a report from the Comprehensive Sickle Cell Centers Clinical Trial Consortium. [J] . Dampier C, Lieff S, LeBeau P, Pediatric blood & cancer . 2010,第3期

机译：镰状细胞病患儿的健康相关生活质量：综合镰状细胞中心临床试验联合会的报告。
2. Health-related quality of life in adults with sickle cell disease (SCD): a report from the comprehensive sickle cell centers clinical trial consortium. [J] . Dampier C, LeBeau P, Rhee S, American Journal of Hematology . 2011,第2期

机译：镰状细胞病（SCD）成人的健康相关生活质量：综合性镰状细胞中心临床试验协会的报告。
3. Patient-reported outcomes in sickle cell disease and association with clinical and psychosocial factors: Report from the sickle cell disease implementation consortium [J] . Knisely Mitchell R., Pugh Norma, Kroner Barbara, American Journal of Hematology . 2020,第9期

机译：患者报告的镰状细胞病和临床和心理社会因素的结论：镰状细胞疾病实施联盟的报告
4. An mHealth hybrid app for self-reporting pain measures for sickle cell disease [C] . Kevin A. Gary, Pooja Rallabhandi, Elizabeth Walek, 2016 IEEE Healthcare Innovation Point-Of-Care Technologies Conference . 2016

机译：一个mHealth混合应用程序，用于自我报告镰状细胞疾病的疼痛措施
5. Factors that influence health-related quality of life in adolescents with sickle cell disease [D] . Brewer, Cheryl Allen 2011

机译：影响与镰状细胞疾病的青少年健康相关生活质量的因素
6. Health-Related Quality of Life in Children with Sickle Cell Disease: A Report from the Comprehensive Sickle Cell Centers Clinical Trial Consortium [O] . Carlton Dampier, Susan Lieff, Petra LeBeau, -1

机译：患有镰状细胞病的儿童的健康状生活质量：综合镰状细胞中心临床试验联盟的报告
7. Impact of proximity to comprehensive sickle cell center on utilization of healthcare services among children with sickle cell disease [O] . Sadhna M. Shankar, Patrick G. Arbogast, Ed Mitchel, 2008

机译：患有镰状细胞疾病儿童使用医疗服务的综合镰状细胞中心的影响
8. Sickle Cell Disease: Screening, Diagnosis, Management, and Counseling in Newborns and Infants. Clinical Practice Guideline Number 6; Sickle Cell Disease: Comprehensive Screening and Management in Newborns and Infants. Quick Reference Guide for Clinicians Number 6; Sickle Cell Disease in Newborns and Infants. A Guide for Parents [R] . 1993

机译：镰状细胞病：新生儿和婴儿的筛查，诊断，管理和咨询。临床实践指南第6号;镰状细胞病：新生儿和婴儿的综合筛查和管理。第6号临床医生快速参考指南;新生儿和婴儿的镰状细胞病。家长指南

Health-related quality of life in children with sickle cell disease: A report from the Comprehensive Sickle Cell Centers Clinical Trial Consortium

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