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Being a family member of a burn survivor – Experiences and needs

机译:作为烧伤幸存者的家庭成员 - 经验和需求

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摘要

Background: Family members are important in the recovery process of persons with severe burns; however, few previous studies have focused on how this group experiences care and rehabilitation. Objective: To explore family members’ experiences and needs, during the time in hospital and after discharge. Methodology: Explorative study with a qualitative descriptive design. Ten semi-structured interviews with family members of injured persons treated at the national burn centres were recorded digitally, transcribed verbatim, and analysed using content analysis. Findings: Five categories were related to experiences during care: Experiencing excellent treatment and support, Experiencing mistrust and a rejecting attitude, Feelings of chaos and shock, Being the hub of the family network, Feeling hope and thankfulness. Three categories were related to experiences during rehabilitation: Ambiguous feelings, Multifaceted support and Handling the situation. Conclusion: The experiences of the time in hospital and during rehabilitation are individual and comprise a mixture of positive and negative experiences and a diversity of needs. The results suggest that healthcare professionals should be proactive and identify specific needs for support as well as provide individualized treatment of family members. Keywords: Burns, Critical care, Family centred care, Family members, Needs, Experiences
机译:背景:家庭成员在严重烧伤的人的恢复过程中很重要;然而,少数以前的研究侧重于这一组经历关心和康复的研究。目的:探讨家庭成员的经验和需求,在医院和出院后。方法论:具有定性描述性设计的探索性研究。在国民烧毁中心治疗的受伤人员家庭成员的十个半结构性访谈被数字化地记录,翻译逐字,并使用内容分析进行分析。调查结果:五个类别与护理期间的经验有关:体验出色的待遇和支持,经历不信任和拒绝态度,混乱和震惊的感觉,是家庭网络的中心,感受希望和感恩。三类与康复期间的经验有关:暧昧的感受,多方面的支持和处理情况。结论:在医院和康复期间的时间的经验是个体,包括积极和负面经历的混合物和需求的多样性。结果表明,医疗保健专业人员应该积极主动,并确定支持的特定需求,并为家庭成员提供个性化待遇。关键词:烧伤,关键护理,家庭中心护理,家庭成员,需求,经验

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