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The treatment burden of cystic fibrosis: a day-to-day experience with treatment as someone with cystic fibrosis

机译：囊性纤维化的治疗负担：作为具有囊性纤维化的人的治疗日常经验

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Jessica Maetz; Jessica Denning;
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年度 2021
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1. UNDERSTANDING THE TREATMENT BURDEN IN CYSTIC FIBROSIS: A STEP TOWARDS A TRIAL OF STOPPING TREATMENT? [J] . Rowbotham N. J., Smith S. J., Elliott Z. C., Pediatric Pulmonology . 2018,第Suppla2期

机译：了解囊性纤维化治疗负担：迈向停止治疗试验的一步吗？
2. UNDERSTANDING THE TREATMENT BURDEN IN CYSTIC FIBROSIS: A STEP TOWARDS A TRIAL OF STOPPING TREATMENT? [J] . Rowbotham N. J., Smith S. J., Elliott Z. C., Pediatric Pulmonology . 2018,第Suppla2期

机译：了解囊性纤维化治疗负担：迈向停止治疗试验的一步吗？
3. Social support is associated with fewer reported symptoms and decreased treatment burden in adults with cystic fibrosis [J] . Flewelling Kassie D., Sellers Deborah E., Sawicki Gregory S., Journal of cystic fibrosis: official journal of the European Cystic Fibrosis Society . 2019,第4期

机译：社会支持与患有囊性纤维化的成年人的报告症状减少，减少了治疗负担
4. Cystic fibrosis transmembrane conductance regulator gene mutations cause 'black' pigment gallstone formation: new insights from mouse models and implications for therapeutic interventions in cystic fibrosis [C] . A. L. BRODERICK, H. WITTENBURG, M. A. LYONS, Falk Symposium . 2004

机译：囊性纤维化跨膜电导调节剂基因突变引起'黑色'颜料胆结石形成：来自小鼠模型的新见解，以及对囊性纤维化治疗干预的影响
5. Cystic Fibrosis Transmembrane Conductance Regulator Modulator Therapies in Cystic Fibrosis: A Retrospective Evaluation of a Nationwide Specialty Pharmacy Database [D] . Mehta, Zumi . 2020

机译：囊性纤维化跨膜电导调节剂调节剂患者囊性纤维化：全国特色药房数据库的回顾性评估
6. High Treatment Burden in Adults with Cystic Fibrosis: Challenges to Disease Self-Management [O] . Gregory S. Sawicki, Deborah E. Sellers, Walter M. Robinson -1

机译：囊性纤维化成人的高治疗负担：疾病自我管理的挑战
7. 231 A study of treatment activities and perceived treatment burden in adults with cystic fibrosis [O] . Mahmood M., Green C., Male C., 2014

机译：231成人囊性纤维化的治疗活动和感知的治疗负担的研究

The treatment burden of cystic fibrosis: a day-to-day experience with treatment as someone with cystic fibrosis

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