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Mennyit vár ma Magyarországon egy myelomás beteg a diagnózisig?

机译:匈牙利骨髓瘤患者今天有多长时间可以诊断出来?

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摘要

INTRODUCTION: Long delays with the diagnosis of myeloma are common. So far there has not been a comprehensive study on this issue in Hungary. AIM: The aim of the authors was to analyze the waiting time from their first symptoms to the diagnosis of myeloma. METHOD: 193 myeloma patients treated in one large tertiary referral hematology centre in Hungary were included. RESULTS: The median time was 4.1 months (0-35.4) until diagnosis, and 5.2 months (0-35.4) until treatment. The delay was longer in patients with better prognosis (early stage, low cytogenetic risk), in nonsecretory disease and in 5 patients with amyloidosis. There was no significant relationship between the delay and the survival. CONCLUSIONS: Considering the results of the present study and earlier literature data, the authors look for possibilities to improve the diagnostic delay. They think that the key to an earlier diagnosis is in the hands of the primary care physicians as they see the patients first and decide whether it is necessary to refer them to further test and to which specialty. Helping them with diagnostic algorithms, clear referring pathways, fast tracking patients with urgent problems, and making serum electrophoresis universally available in the primary care could help to reduce the time that myeloma patients spend waiting. Orv. Hetil., 2014, 155(39), 1538-1543.
机译:简介:骨髓瘤的诊断通常会出现长时间的延迟。到目前为止,匈牙利尚未对此问题进行全面研究。目的:作者的目的是分析从最初症状到诊断骨髓瘤的等待时间。方法:纳入在匈牙利的一家大型三级转诊血液学中心接受治疗的193名骨髓瘤患者。结果:到诊断的中位时间为4.1个月(0-35.4),直到治疗的中位时间为5.2个月(0-35.4)。预后较好的患者(早期,细胞遗传学风险低),非分泌性疾病和5例淀粉样变性患者的延迟时间更长。延迟与生存之间没有显着关系。结论:考虑到本研究的结果和较早的文献数据,作者寻找改善诊断延迟的可能性。他们认为,早期诊断的关键在基层医疗医生的手中,因为他们首先会见患者,并决定是否有必要将他们转诊以进行进一步检查以及选择哪个专业。通过诊断算法,清晰的转诊途径,快速跟踪有紧急问题的患者以及在初级保健中普遍使用血清电泳来帮助他们,可以帮助减少骨髓瘤患者等待的时间。 Orv。 Hetil。,2014,155(39),1538-1543。

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