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Male partner experiences of females with an acquired brain injury: an interpretative phenomenological analysis

机译:女性获得性脑损伤的男性伴侣经历:解释现象学分析

摘要

Relationships following acquired brain injury (ABI) are extremely vulnerable to strain and breakdown (Burridge, Huw Williams, Yates, Harris, & Ward, 2007; Kreutzer, Gervasio, & Camplair, 1994). Spouses are faced with the challenge of adapting to the emotional, cognitive and behavioural changes in their loved one; an often distressing, overwhelming and unpredictable experience. With the spouse more likely to take the lead role as caregiver, they are left suffering the burden associated with such major role change (Chwalisz & Stark-Wroblewski, 1996).udAcquired brain injury may result in damage to the frontal lobe, temporal lobe and the limbic and pituitary system; areas known to be associated with sexual function (Oddy, 2001). Additionally, loss of confidence, memory impairment, anxiety and fear of failure to perform sexually, may indirectly impact on a couple’s ability to mutually enjoy sexual intimacy (Moreno, Arango Lasprilla, Gan, & McKerral, 2013). To date, the published literature in the field of sexual intimacy following ABI is primarily limited to quantitative studies which report divorce and separation rates (Godwin, Kreutzer, Arango Lasprilla, & Lehan, 2011). The qualitative experience, from the viewpoint of the person with an ABI and their intimate partner, is so often missed. The first paper within this thesis, a systematic review of intimacy post-ABI, narrows this gap within the current literature base by synthesising the results of six qualitative papers.udAcquired brain injury can transform the lives of family members (Bowen, Yeates, & Palmer, 2010). Partners have been referred to as the ‘hidden patients’ following ABI (Fengler & Goodrich, 1979) as they, too, are required to make huge, yet unnoticed, changes to their lives. Published literature exploring partners and spouses following ABI, to date, has overlooked the viewpoint of the male partner. Their experience of role change, intimacy and resilience is not represented, nor have their personal stories been told. The second paper within this thesis explores just that, the male partner’s lived experience, following their female partner’s ABI. Adhering to the analytic methodology of Interpretative Phenomenological Analysis (IPA) (Smith, Flowers, & Larkin, 2009), the males’udaccounts are presented in the form of a coherent and insightful narrative of the experience of the male partner.udTogether, the two papers highlight the need for services to support the couple jointly, without disregarding the needs of the uninjured partner. The importance of support for the couple throughout the entire rehabilitation process is highlighted, as so often partners’ needs remain unmet. Sexuality following ABI needs to be openly explored, with relationship counselling and couples therapy routinely offered. Further studies exploring the male partner experience following their female partner’s ABI would add richness to the themes presented here.
机译:后天性脑损伤(ABI)后的关系极易受到压力和破坏的影响(Burridge,Huw Williams,Yates,Harris,&Ward,2007; Kreutzer,Gervasio,&Camplair,1994)。配偶面临着适应亲人的情绪,认知和行为变化的挑战;通常令人沮丧,压倒性和不可预测的经历。随着配偶更有可能担任照料者,他们将承担与这种主要角色变化相关的负担(Chwalisz&Stark-Wroblewski,1996)。 ud获得性脑损伤可能导致额叶,颞叶损伤以及边缘和垂体系统;已知与性功能有关的区域(Oddy,2001年)。此外,失去信心,记忆力减退,焦虑以及对无法进行性交的恐惧,可能会间接影响夫妻彼此享受性亲密的能力(Moreno,Arango Lasprilla,Gan和McKerral,2013年)。迄今为止,在ABI之后的性亲密领域,已发表的文献主要限于定量研究,该研究报告了离婚率和分居率(Godwin,Kreutzer,Arango Lasprilla和Lehan,2011年)。从拥有ABI的人及其亲密伴侣的角度来看,定性体验常常被错过。本文的第一篇论文是对ABI后亲密关系的系统综述,它通过综合六篇定性论文的结果缩小了当前文献库中的差距。 ud获得性脑损伤可以改变家庭成员的生活(Bowen,Yeates和Palmer,2010年)。在ABI之后,合作伙伴也被称为“隐藏患者”(Fengler&Goodrich,1979),因为他们也需要对生活做出巨大而又不为人所知的改变。迄今为止,已出版的有关伴侣和配偶的探索伴侣和配偶的文献都忽视了男性伴侣的观点。他们的角色变化,亲密和弹性的经历没有得到体现,也没有讲述他们的个人故事。本文的第二篇论文探讨的是男性伴侣的生活经历,紧随女性伴侣的ABI之后。坚持解释性现象学分析(IPA)的分析方法(Smith,Flowers和Larkin,2009年),以男性伴侣的经历的连贯而富有洞察力的叙述形式呈现了男性的大口算。这两篇论文强调了在不忽视未受伤伴侣的需要的情况下,需要共同支持夫妻的服务。强调了在整个康复过程中对夫妇的支持的重要性,因为常常没有满足伴侣的需求。需要公开探讨ABI之后的性行为,并定期提供关系咨询和夫妻治疗。继女性伴侣的ABI之后,进一步研究男性伴侣的经验,可以使此处介绍的主题更加丰富。

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    Brunsden Cara;

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  • 年度 2014
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