Inviting Public Participation in Clinical Research: Building Trust through Partnerships October 26-27, 2004. Workshop Proceedings

摘要

The NIH Directors Council of Public Representatives (COPR) held a workshop, Inviting Public Participation in Clinical Research: Building Trust through Partnerships, on October 26, 2004, at the Natcher Conference Center on the NIH campus in Bethesda, Maryland. At the workshop, more than 80 participants, representing the various communities who are involved or have an interest in clinical research, met to discuss issues related to public participation and trust. In a full day of interactive sessions, the attendees discussed the publics perception of medical research and explored both the barriers to and opportunities for enhancing public participation and trust in clinical research within the context of partnerships. The communities represented at the workshop included former and/or current clinical trial participants, health care professionals, researchers, research administrators, constituency group leaders, community health and outreach experts, and members of the media. The information that was shared represented diverse ethnic, racial, cultural, and geographic perspectives.