Changing Moral Focus of Newborn Screening: An Ethical Analysis by the President's Council on Bioethics

摘要

The subject of this white paper is a type of genetic screening that is widely practiced in the United States and yet little understood, especially by the parents of the nearly four million newborns who are screened every year. In the last few years, both the practice and the moral focus of newborn screening have begun to change, also in ways that are little understood or publicly discussed. With the hope of promoting discussion and understanding of these changes, among policymakers and the public at large, the Council undertook the inquiry that now culminates in the publication of this white paper.