The Cancer Experiences Collaborative: better research, by better researchers.

摘要

Care of the dying has traditionally been women's work in the home and often nursing work in institutional settings, of lesser status and prestige than curing disease or controlling symptoms. As such it has arguably been hidden work, unseen, unrecognized and under-researched. In more recent times, with the development of palliative care as a medical specialty in some countries and palliative care nursing as a sub-discipline, there has been greater scrutiny of the evidence base for practice and a call for more rigorous research designs. While the focus has been predominantly upon improving the quality and quantity of clinical research, there is a growing acknowledgement that evaluation studies that investigate health care systems are also crucial.