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Bad news and first impressions: patient and family caregiver accounts of learning the cancer diagnosis.

机译:坏消息和第一印象:了解癌症诊断的患者和家庭护理人员说明。

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摘要

Studies in medical journals regarding the delivery of a cancer diagnosis typically focus on a single clinic episode where the definitive news is disclosed to the patient by the physician. Far less research characterizes the diagnosis in the way patients and their family members often describe it: as a longitudinal, multi-sited search process culminating in a news-telling and realization event. This article analyzes lay accounts of learning a cancer diagnosis drawing on ethnographic interviews among a purposive sample of 28 patients recently diagnosed with leukemia, myeloma, or lymphoma and 30 of their family caregivers. The participants, recruited at a large cancer center in the United States, were asked to describe "the day" they learned the diagnosis. Narrative analysis revealed that in almost every case, detailed descriptions of preliminary events - such as the pace and sequence of testing; smooth or disorganized transitions between care providers; and the timeliness or delays in diagnosis - were used to contextualize the actual episode of hearing the diagnosis and reacting to the news. This study finds that patients' and caregivers' experience of the medical system prior to hearing the news played an important role in the way the news was ultimately internalized. The findings also provide empirical support for integrating lay perspectives on the diagnostic experience into future cancer disclosure guidelines.
机译:医学期刊中有关进行癌症诊断的研究通常集中在单个临床事件上,在该事件中,医生向患者披露了明确的新闻。很少有研究以患者及其家人经常描述诊断的方式来描述诊断的特征:这是一个纵向的,多位置的搜索过程,最终导致了新闻报道和实现事件。本文分析了根据民族志访谈学来的癌症诊断的一般情况,该研究是针对28例最近被诊断出患有白血病,骨髓瘤或淋巴瘤的患者及其30名家庭看护人的样本而进行的。在美国一家大型癌症中心招募的参与者被要求描述他们了解诊断的“那天”。叙事分析表明,几乎在每种情况下,都对初步事件进行了详细的描述-例如测试的速度和顺序;护理人员之间的平稳过渡或混乱过渡;以及诊断的及时性或延误性-用于根据听力诊断和对新闻做出反应的实际情境。这项研究发现,患者和护理人员在听到新闻之前对医疗系统的体验在新闻最终被内化的过程中起着重要作用。这些发现还为将对诊断经验的非常规观点整合到未来的癌症披露指南中提供了经验支持。

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