Sister's Caregiving Experience to a Sibling with Cerebral Palsy- the Impact to Daughter-Mother Relationships

摘要

This paper uses a phenomenological method to examine Taiwanese women's care giving experiences of their brothers or sisters with Cerebral Palsy and how they negotiated daughter-mother relationships when care giving for a sibling with CP. Drawing on stories shared by six women from the northern and the middle part of Taiwan who were recruited via social service agencies and snowball sampling, the results of this study suggest that these sisters internalized the cultural norm of Shan-Shia (superior-subordinate) but also appealed for support from fathers or brothers to transform their mothers' outdated notions about ways of caring for their sibling with CP and to protect their sibling with CP from mothers' negligent and abusive behaviors. Greater attention must be given to the promotion of a more equitable sharing of caring tasks by men and women in the family.