A project of network for the management of cutaneous rare cancers (the K-CUR network) [Projet réseau cancers cutanés rares K-CUR]

摘要

Rare skin cancers (such as Merkel cell carcinoma, dermatofibrosarcoma protuberans, Kaposi's sarcoma...) refer to a mixed group of clinical, histological, immunohistological and evolutive diseases of which the management requires multidisciplinary expertise. Their cumulated incidence is 1/100 000 per year. Dermatologists are usually the first practitioners concerned by their management, with the help and cooperation of a network of dermatopathologists specialized in oncology. Management of these cancers varies greatly from one hospital to another. In 2008, the French national institute on cancer has funded a network of rare skin cancer specialists (K-CUR) so as to bring all efforts together on a large national scale. The aim of this project is: 1) to improve the clinical practice and to make the best techniques available to affected patients; 2) to ameliorate the training of the professionals; and 3) to improve clinical, epidemiologic, pathophysiological and genetic research on these cancers.