The development and implementation of patient advice literature for patients attending the menopause clinics at St James' University Hospital, Leeds

摘要

Introduction: A diagnosis of premature ovarian failure (POF) may have detrimental effects on a woman's health and psycho-social wellbeing. In order to make informed choices about future management and to avoid potential long-term health complications, it is vital that woman receive adequate information regarding their diagnosis. A recent audit identified a lack of standardised information provision for women with POF. Improving patient information availability through the development and implementation of a patient information leaflet (PIL) may help to improve quality of care and overall service satisfaction in Leeds. A service evaluation can then be undertaken into the provision of PIL in Leeds to gain an insight into the effectiveness of this method.Methods: A review of current literature and feedback from patients enabled the design and creation of a PIL on POF. The patient information literature was reviewed by healthcare professionals, members of The Daisy Network and piloted with a small cohort of patients. A total of 18 patients and 14 healthcare professionals reviewed the information leaflet. The patient information was modified in relation to feedback received. Results: The overall respondent feedback was positive with the majority of patients (94%) and all healthcare professionals (100%) satisfied with the content of the information. All patient respondents (100%) and a large proportion of healthcare professionals (80%) agreed that the structure, layout and flow of the leaflet were appropriate. All respondents (100%) felt that provision of this leaflet at the time of diagnosis would improve understanding, confidence and overall patient experience. Feedback suggested that more emphasis needed to be placed on the psychological effects of POF. Additional suggestions included making minor modifications to improve aesthetic appearance. Conclusion: This service evaluation re-affirmed that the current care of women diagnosed with POF has capacity for improvement. The provision of PILs such as this may minimise adverse emotional outcomes and facilitate clinicians in optimising the impact of finite resources. Results indicated that the PIL developed and trialled within the Leeds teaching hospitals trust improved patient understanding, awareness and confidence advocating its implementation into routine practice.