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首页> 外文期刊>Familial cancer >Impact of computer-assisted data collection, evaluation and management on the cancer genetic counselor's time providing patient care.
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Impact of computer-assisted data collection, evaluation and management on the cancer genetic counselor's time providing patient care.

机译:计算机辅助数据收集,评估和管理对癌症遗传咨询师提供患者护理时间的影响。

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摘要

Cancer genetic counseling sessions traditionally encompass collecting medical and family history information, evaluating that information for the likelihood of a genetic predisposition for a hereditary cancer syndrome, conveying that information to the patient, offering genetic testing when appropriate, obtaining consent and subsequently documenting the encounter with a clinic note and pedigree. Software programs exist to collect family and medical history information electronically, intending to improve efficiency and simplicity of collecting, managing and storing this data. This study compares the genetic counselor's time spent in cancer genetic counseling tasks in a traditional model and one using computer-assisted data collection, which is then used to generate a pedigree, risk assessment and consult note. Genetic counselor time spent collecting family and medical history and providing face-to-face counseling for a new patient session decreased from an average of 85-69 min when using the computer-assisted data collection. However, there was no statistically significant change in overall genetic counselor time on all aspects of the genetic counseling process, due to an increased amount of time spent generating an electronic pedigree and consult note. Improvements in the computer program's technical design would potentially minimize data manipulation. Certain aspects of this program, such as electronic collection of family history and risk assessment, appear effective in improving cancer genetic counseling efficiency while others, such as generating an electronic pedigree and consult note, do not.
机译:传统上,癌症遗传咨询会议包括收集医学和家族史信息,评估该信息以了解遗传性癌症综合征的遗传易感性,将信息传达给患者,在适当时提供基因测试,征得同意,随后记录与患者的遭遇临床记录和血统书。存在软件程序以电子方式收集家庭和病史信息,旨在提高收集,管理和存储该数据的效率和简便性。这项研究比较了遗传咨询师在传统模型和使用计算机辅助数据收集的癌症遗传咨询任务中所花费的时间,然后将其用于生成血统书,风险评估和咨询笔记。使用计算机辅助数据收集时,遗传咨询员用于收集家庭和病史以及为新患者提供面对面咨询的时间从平均85-69分钟减少。但是,由于花费在生成电子谱系和咨询记录上的时间增加了,因此在遗传咨询过程的所有方面,总体遗传咨询时间没有统计学上的显着变化。计算机程序技术设计的改进可能会最大程度地减少数据操作。该计划的某些方面(例如电子收集家族史和风险评估)在提高癌症遗传咨询效率方面似乎是有效的,而其他方面(例如生成电子谱系和咨询笔记)则无效。

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