How do Individuals with Complete Androgen Insensitivity Syndrome, Mayer-Rokitansky-Kuster-Hauser Syndrome or Polycystic Ovary Syndrome Experience Contact to Other Affected Persons?

摘要

Persons with different sex characteristics may suffer from a feeling of being "different" or "not normal". In this study, persons with one of 3 diagnoses (complete androgen insensitivity syndrome [CAIS]; Mayer-Rokitansky-Kuster-Hauser syndrome [MRKHS], polycystic ovary syndrome [PCOS]) were asked whether they had contact to other affected persons and how they assessed this contact. The correlation between contact and psychological distress was evaluated.