首页> 外文期刊>International journal of nursing studies >Managing uncertainty in life after stroke: a qualitative study of the experiences of established and new informal carers in the first 3 months after discharge.
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Managing uncertainty in life after stroke: a qualitative study of the experiences of established and new informal carers in the first 3 months after discharge.

机译:处理中风后生活中的不确定性:定性研究出院后头三个月内既定和新的非正式护理人员的经历。

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BACKGROUND: Caring for stroke survivors at home can have an enormous impact on informal carers and past research has tended to focus on the negative emotional consequences of caring, with few identifying any positive outcomes. Despite an awareness that the experiences of these carers change over time, there is a dearth of qualitative studies investigating carers' experiences over time. OBJECTIVES: To investigate the experiences of informal carers of stroke survivors over time. DESIGN: Qualitative study. SETTING: Carers of stroke survivors from one acute and two rehabilitation units in South-West London. PARTICIPANTS: A purposive sample of 31 informal carers of stroke survivors discharged from inpatient treatment and rehabilitation returning home were interviewed. The majority of participants' were spouses but they also included adult sons and daughters. Most participants were post-retirement age. METHODS: Audio-taped in-depth interviews of 30-90 min duration were undertaken at three time points-close to discharge, 1 month and 3 months post-discharge. Interviews were transcribed immediately after each interview. Analysis was an ongoing process starting during data collection and ending with themes. As themes emerged they were identified and discussed with other members of the team so that any patterns across the interviews were noted. Themes were followed up at subsequent interviews. This process enabled progressive focusing of ideas and also validated respondents' accounts. RESULTS: There were a total of 81 interviews and these carers were similar demographically to other carers in stroke research. A central theme of uncertainty with a number of other interconnected themes were identified. Other themes including adopting routines and strategies, absolute and relative positives and questioning the future could be seen to both influence and be influenced by uncertainty. These themes can all be related to the changes in carers' lives or the management of uncertainty around stroke. Differences in experiences and coping strategies were identified between new carers and those with prior caring experience. CONCLUSIONS: Carers experience considerable uncertainty when caring for stroke survivors. Living with uncertainty is central to these carers' experiences and this should be acknowledged by clinicians when supporting stroke survivors and carers. Encouraging the identification of the positive aspects of caring may help carers manage the challenges and uncertainties created by stroke.
机译:背景:在家里照顾中风幸存者会对非正式照护者产生巨大影响,过去的研究倾向于集中于照护的负面情绪后果,很少发现任何积极的结果。尽管意识到这些护理人员的经历会随着时间而变化,但是缺乏定性研究来调查护理人员的经历随时间的变化。目的:调查中风幸存者随时间的非正式照料者的经历。设计:定性研究。地点:伦敦西南部一处急诊室和两所康复室的中风幸存者的照顾者。参与者:目的是对31名中风幸存者的非正式照护者进行抽样调查,这些照护者是从住院治疗和康复返回家中出院的。参加者大多数是配偶,但也包括成年子女。大多数参加者是退休后年龄。方法:在接近出院,出院后1个月和3个月的三个时间点进行了30-90分钟的深度访谈。每次采访后都立即抄录采访。分析是一个持续的过程,从数据收集开始,一直到主题结束。随着主题的出现,他们被确定并与团队中的其他成员进行讨论,从而记录了访谈中的所有模式。在随后的采访中对主题进行了跟进。这个过程使想法逐渐集中,并验证了受访者的陈述。结果:总共进行了81次访谈,这些护理人员的人口统计学特征与中风研究中的其他护理人员相似。确定了一个不确定性的中心主题,以及许多其他相互关联的主题。其他主题包括采用套路和策略,绝对和相对的积极态度以及对未来的质疑,可以被认为既影响又受不确定性的影响。这些主题都可能与护理人员生活的变化或中风周围不确定性的管理有关。确定了新护理人员与先前有护理经验的人在经验和应对策略上的差异。结论:护理者在照顾中风幸存者时会遇到很大的不确定性。不确定的生活对于这些看护者的体验至关重要,当支持卒中幸存者和看护者时,临床医生应该承认这一点。鼓励识别护理的积极方面,可以帮助护理者应对中风带来的挑战和不确定性。

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