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'It's easier said than done': perspectives on mammography from women with intellectual disabilities.

机译:“说起来容易做起来难”:智障女性对乳腺摄影的看法。

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PURPOSE: Women with intellectual disabilities (or mental retardation) are living longer, receiving primary care in the community, and have equal rates of breast cancer compared with women in the general population, but they have lower rates of mammography. Although several public campaigns have successfully raised the mammography rate for racial and ethnic minority women, they have not penetrated the community of women with intellectual disabilities. No research to date has explored potential barriers to mammography for these women by involving the women themselves as participants. METHODS: We undertook a qualitative study to explore the perceptions and understanding of mammography for women with intellectual disabilities and some of the potential reasons they would or would not have the test. Twenty-seven intellectually disabled women were recruited through a variety of community groups and interviewed using a semistructured interview guide. Data were analyzed using qualitative techniques from grounded theory. RESULTS: Participants in this study described being poorly prepared for mammography: they did not understand its purpose and were not prepared for the logistics of the experience. The latter was more upsetting to participants and contributed to their negative perceptions of mammography. Participants reported feeling unprepared and singled out for being unprepared, despite their desire to have at least 1 mammogram, as do other women their age. CONCLUSIONS: Women with intellectual disabilities perceive mammography differently than do women who do not have intellectual disabilities, and their perception is informed by inadequate knowledge, anxiety, and inadequate preparation. These themes should be considered when planning cancer prevention interventions with this population and when counseling individual women in the clinical setting.
机译:目的:智障妇女(或智力低下)的寿命更长,在社区接受初级保健,与普通人群中的妇女相比,乳腺癌的发病率相同,但乳房X线照片的发病率较低。尽管有几项公共运动成功地提高了少数族裔和少数族裔妇女的乳腺摄影率,但这些运动尚未渗透到智障妇女社区。迄今为止,尚无任何研究通过让妇女本人作为参与者来探讨这些妇女的乳房X线照相术的潜在障碍。方法:我们进行了定性研究,以探讨智障女性对乳房X线摄影的看法和理解,以及她们接受或不接受此项检查的一些潜在原因。通过各种社区团体招募了27名智障妇女,并使用半结构化访谈指南进行了访谈。使用基于扎根理论的定性技术分析数据。结果:这项研究的参与者描述乳房X线摄影的准备不足:他们不了解乳房X线摄影的目的,也没有为后勤经验做准备。后者使参与者更加不高兴,并加剧了他们对乳房X线照片的负面看法。参与者报告说,尽管他们希望至少有一张乳房X光检查照片,但与其他年龄段的女性一样,他们感到自己没有做好准备,并为未做好准备感到单身。结论:智障女性与没有智障女性的乳房X线摄影不同,她们的知觉是由知识,焦虑和准备不足引起的。在计划针对该人群的癌症预防干预措施以及在临床环境中为个别妇女提供咨询时,应考虑这些主题。

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