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Men With Breast Cancer and Their Encounters With Masculinity: An Interpretative Phenomenological Analysis Using Photography

机译:患有乳腺癌及其男性气质的遭遇:使用摄影的解释性现象分析

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Underacknowledged clinically and socially, breast cancer in men is a critical health issue, with complex ramifications for those affected. Experiential research exploring men's meaning making of breast cancer accordingly is scant. In this innovative multimethod inquiry, 31 British men, accessed from both clinical care and community contexts, took photographs to illustrate their breast cancer experiences and discussed these in extended semistructured interviews. Verbal and photographic data were analyzed together using interpretative phenomenological analysis through the emerging "visual voice" paradigm. Findings illuminated both the multiple difficulties men encountered and the coping strategies they employed. In particular, the complex and dynamic ways in which men navigated, made sense of, and performed masculinity through their breast cancer journey was pivotal to understanding these experiences and how they presented their accounts, verbally and visually. Thus, the analysis presented identifies and illustrates three experiential and interconnected encounters with masculinity: "Threatened-exposed," "Protected-asserted," and "Reconsidered-reconfigured" which are presented both thematically and through a novel schematic representation. We demonstrate how men's relationship with masculinity shapes their accounts of both the embodied lived experience of breast cancer and how the cancer experience, with its many changes, challenges, and consequences, is communicated to others. How and why men encounter/perform these different masculinities at different points in time across the breast cancer trajectory, and how this aids their adjustment to illness and life postdiagnosis is considered. We conclude with recommendations for improved future breast cancer care and support and suggest future research directions with this community of hitherto underresearched and underrepresented men.
机译:在临床和社会上,男性乳腺癌在临床上和社会上的影响不足是一个关键的健康问题,对受影响的人产生了复杂的影响。相应地探索男性对乳腺癌的意义的经验研究很少。在这个创新的多途径询问中,有31名英国男子从临床护理和社区环境中获得了照片,拍摄了照片来说明他们的乳腺癌经历,并在扩展的半结构化访谈中进行了讨论。通过新兴的“视觉声音”范式使用解释性现象学分析一起分析了口头和摄影数据。调查结果阐明了男人遇到的多种困难和他们采用的应对策略。特别是,男人在乳腺癌之旅中导航,意识到和表现阳刚之气的复杂而动态的方式对于理解这些经历以及他们如何在口头和视觉上呈现他们的帐户至关重要。因此,进行的分析确定并说明了三个具有男性气质的经验和相互联系的相遇:“受威胁的暴露”,“受保护的授权”和“重新考虑的重新配置”,它们均以主题和新颖的示意图呈现。我们展示了男性与男性气质的关系如何塑造他们对乳腺癌的体现经验以及癌症体验以及如何将其许多变化,挑战和后果传达给其他人的叙述。男性如何和为什么在整个乳腺癌轨迹的不同时间点遇到/执行这些不同的男性态,以及这如何帮助他们调整对疾病和诊断后的疾病。我们最终提出了改善未来乳腺癌护理和支持的建议,并建议与这个迄今为止研究不足和代表性不足的男性社区的未来研究指示。

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