Gentle hugs: Internet listservs as sources of support for women with lupus.

摘要

Systemic lupus erythematosus is a chronic autoimmune illness that usually affects women during their childbearing years. Women with lupus must learn to live with a variety of unpredictable symptoms, making a consistent source of support and information important for day-to-day illness management. For many women, the Internet fills this need. This article reports the findings of a qualitative study of 3 Internet listservs that provide support and information to the community of people living with lupus. Five thematic areas that describe the type of information and support available to listserv participants are described and the benefits of listserv participation are discussed.