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Shared Vulnerabilities in Research

机译:研究中的共享漏洞

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The U.S. Code of Federal Regulations governing federally funded research on human subjects assumes that harmful research is sometimes morally justifiable because the beneficiaries of that research share a particular vulnerability with its subjects. In this article, I argue against this assumption, which occurs in every subpart of the Code of Federal Regulations that deals with specific vulnerable populations (pregnant women, fetuses, neonates, prisoners, and children). I argue that shared vulnerability is no exception to the general principle that harming one person in order to benefit another is no more justifiable if the two people have traits in common. Further, shared vulnerability is not a reasonable proxy for any morally relevant desideratum of research, in particular the desire to benefit the worst off, the desire to avoid exploitation, and the desire to use vulnerable populations in research only when necessary.
机译:关于联邦资助的有关人类受试者研究的美国联邦法规典范认为,有害研究有时在道义上是合理的,因为该研究的受益者与其研究对象有特殊的脆弱性。在本文中,我反对这种假设,这种假设出现在涉及特定弱势群体(孕妇,胎儿,新生儿,囚犯和儿童)的《联邦法规》的每个子部分中。我认为,共有的脆弱性并非普遍原则的例外,因为如果两个人具有共同的特质,伤害一个人以使另一个人受益就不再是合理的。此外,共享的脆弱性不能合理替代任何与道德相关的研究愿望,特别是希望让最贫困者受益,避免剥削以及仅在必要时才使用脆弱人群的愿望。

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