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首页> 外文期刊>Quality of life research: An international journal of quality of life aspects of treatment, care and rehabilitation >Quality of life (QoL) for people with rare diseases: challenges and examples from a study pre-testing the UK-PSC-QoL, a provisional QoL tool for people with primary sclerosing cholangitis (PSC) in the UK
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Quality of life (QoL) for people with rare diseases: challenges and examples from a study pre-testing the UK-PSC-QoL, a provisional QoL tool for people with primary sclerosing cholangitis (PSC) in the UK

机译:患有罕见疾病的人的生活质量(QOL):从研究预先测试英国 - PSC-QOL的研究挑战和实例,是英国初级硬膜炎胆管炎(PSC)的临时QOL工具

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