Palliative care in children with spinal muscular atrophy type 1: how do they die? Results from a French multicentric study (National Hospital Clinical Research Program)

Hully M.; Barnerias C.; Vanesse S.; Viallard M.; Desguerre I.

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Palliative care in children with spinal muscular atrophy type 1: how do they die? Results from a French multicentric study (National Hospital Clinical Research Program)

机译：脊髓肌肉萎缩型儿童的姑息治疗1：他们如何死亡？法国多中心研究（国家医院临床研究计划）的结果

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《Neuromuscular disorders: NMD》 |2017年第2期|共1页
作者
Hully M.; Barnerias C.; Vanesse S.; Viallard M.; Desguerre I.;
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PAPHP Paris France;

PAPHP Paris France;

PAPHP Paris France;

PAPHP Paris France;

PAPHP Paris France;

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原文格式 PDF
正文语种 eng
中图分类神经病学;
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1. Palliative care in children with spinal muscular atrophy type 1: how do they die? Results from a French multicentric study (National Hospital Clinical Research Program) [J] . Hully M., Barnerias C., Vanesse S., Neuromuscular disorders: NMD . 2017,第Suppla2期

机译：脊髓肌肉萎缩型儿童的姑息治疗1：他们如何死亡？法国多中心研究（国家医院临床研究计划）的结果
2. Genotype-phenotype studies in infantile spinal muscular atrophy (SMA) type I in Germany: implications for clinical trials and genetic counselling. [J] . Rudnik Schoneborn S, Berg C, Zerres K Clinical Genetics: An International Journal of Genetics in Medicine . 2009,第2期

机译：德国婴儿型脊髓性肌萎缩症（SMA）I型的基因型-表型研究：对临床试验和遗传咨询的意义。
3. High Intensity End-of-Life Care Among Children, Adolescents and Young Adults with Cancer Who Die in Hospitals: A Population-Based Study from the French National Hospital Database [J] . Revon-Riviere G., Pauly V., Gentet J. C., Pediatric blood & cancer . 2019,第S4期

机译：在医院死亡的儿童，青少年和年轻成年人的高强度终生护理：来自法国国家医院数据库的基于人口的研究
4. EXOtrainer Project Clinical Evaluation of Gait Training with Exoskeleton in Children with Spinal Muscular Atrophy [C] . Daniel Sanz-Merodio, Gonzalo Puyuelo, Amartya Ganguly, International Conference on Intelligent Robots . 2020

机译：Exotrainer在脊髓肌肉萎缩儿童中对外骨骼进行步态训练的临床评价
5. Continuous blood glucose monitoring and dietary intake in a cohort of children with spinal muscular atrophy type II. [D] . Cutler, Hilary Lauren. 2016

机译：对一组患有II型脊髓性肌萎缩症的儿童进行连续血糖监测和饮食摄入。
6. Experiences of caregivers of children with spinal muscular atrophy participating in the expanded access program for nusinersen: a longitudinal qualitative study [O] . Petra Kiefer, Janbernd Kirschner, Astrid Pechmann, 2020

机译：脊髓肌萎缩的儿童照顾者参与Nusinersen扩大访问计划的儿童：纵向定性研究
7. Experiences of caregivers of children with spinal muscular atrophy participating in the expanded access program for nusinersen: a longitudinal qualitative study [O] . Petra Kiefer, Janbernd Kirschner, Astrid Pechmann, 2020

机译：脊髓肌萎缩的儿童照顾者参与Nusinersen扩大访问计划的儿童：纵向定性研究

Palliative care in children with spinal muscular atrophy type 1: how do they die? Results from a French multicentric study (National Hospital Clinical Research Program)

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