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Impact on interpersonal relationships among patients with multiple sclerosis and their partners

机译:对多发性硬化症及其合作伙伴患者患者人际关系的影响

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Aim: To determine how the diagnosis and symptoms of multiple sclerosis (MS) impact interpersonal relationships. Participants & methods: Data were obtained from a convenience sample of 1010 individuals with MS responding to an online survey; responses were compared with results of a fibromyalgia survey. Results: MS participants had few negative perceptions of relationships with romantic partners/children/close friends but described the impact of fatigue and limited mobility as feelings of being not well understood by others, burdensome and isolated. Conclusion: Despite increasing disability/pain severity, most patients with MS reported high satisfaction levels and few negative perceptions of relationships with romantic partners/children/close friends. Future research should focus on identifying effective coping strategies used by satisfied couples and improving access to high-quality relationship-enrichment programs.
机译:目的:确定多发性硬化症(MS)的诊断和症状如何影响人际关系。 参与者和方法:通过1010个人的便利样本获得数据,MS响应在线调查; 将反应与纤维肌痛调查结果进行比较。 结果:女士参与者对与浪漫合作伙伴/儿童/亲密朋友的关系有很少的负面看法,但是描述了疲劳和有限的流动性的影响,因为其他人并不是很好地理解的感觉,繁琐和隔离。 结论:尽管残疾/疼痛严重程度增加,但MS的大多数患者报告了高满意度水平和对与浪漫合作伙伴/儿童/亲密朋友的关系的负面看法。 未来的研究应侧重于确定满意夫妻使用的有效应对策略,并改善对高质量的关系富集计划的访问。

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