Development and preliminary evaluation of ilearnKAS: An animated video about kidney allocation to support transplant decision‐making

摘要

Abstract Background We aimed to develop and feasibility test an educational video culturally targeted to African American (AA) patients regarding kidney allocation. Methods We iteratively refined an animated video for AAs with multiple stakeholder input and conducted a one‐group, pre–post study with 50 kidney transplant candidates to assess video feasibility and acceptability. A mixed population was chosen to obtain race‐specific acceptability data and efficacy estimates for a larger study. Results Median participant age was 56?years, and 50% were AA. Comparing pre–post video scores, large knowledge effect sizes were found for the cohort ( r ?=?0.7) and in the context of AA race ( r ?=?0.8), low health literacy ( r ?=?0.6), low educational achievement ( r ?=?0.7), age 55?years ( r ?=?0.6), dialysis vintage ≥1?year ( r ?=?0.8), low income ( r ?=?0.7) and low technology access ( r ?=?0.8). Over 87% of participants provided positive ratings on each of the seven acceptability items. The frequency of positive responses increased pre–post video for kidney allocation understanding (78% vs 94%, P ?=?0.008), decisional self‐efficacy (64% vs 88%, P ??0.001) and belief in fairness (76% vs 90%, P ?=?0.02). Conclusions In collaboration with key stakeholders, a culturally targeted educational video was developed that was well received. Results are promising to impact kidney allocation knowledge among AA and non‐AA kidney transplant candidates.