Quality of life, wellbeing and care needs of Irish ostomates

摘要

Having a stoma can reduce a person's quality of life and cause distress. A survey of people in Ireland who have had a stoma for an average of 15 years found that, while they now have a similar quality of life to the general population, they have poorer mental health and a higher level of sexual dysfunction. Respondents want to talk about their experiences and may benefit from more opportunities to talk to others with a stoma or to stoma care nurses. While most patient information suggests that patients can return to their usual diet and their clothes, a majority of ostomates have to make changes in these areas; some dietary changes have implications for their health. Ostomates in Ireland experience continuing problems with leakages and peristomal skin. These issues show there is a need for routine, regular follow up of ostomates by stoma care nurses. Although most patients found follow up by a community stoma care nurse helpful, the provision of this type of service varies.