Care management for foreign children, adolescents, young adults with cancer, and their families

摘要

Abstract Background Little is known about care management for foreign patients in pediatric oncology in European centers. We aimed to describe care given to children, adolescents, and young adults who came to France for cancer treatment, and to determine whether their geographical origin had an influence on decision making. Procedure We conducted a monocentric retrospective study on all foreign patients aged 0–25 years and hospitalized for at least one night in Institut Curie (Paris, France) from 2009 to 2013. We analyzed the potential advantages of receiving treatment in France as well as their social and familial consequences. Results A total of 93 foreign patients’ files were retrieved. Most of these patients came from Africa (70%). In accord with the specific expertise of the institution, retinoblastoma was the most frequent tumor type (39%). An antitumor treatment had already been administrated in the native country in 44% of patients. We considered that 66% of patients received a significant medical advantage from care in our institution. The treatment provided in France was considered impossible in the native country in 44% of cases. The social and familial impact on the patients’ families was high (59%). Almost all patients (96%) received the treatment that would have been proposed to their French counterparts. Conclusions There were notable medical advantages for foreign patients who come to France for their oncologic treatment despite important familial consequences. Patients’ geographical origin did not have an influence on medical decisions.