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The global challenges and opportunities in the practice of rheumatology: white paper by the World Forum on Rheumatic and Musculoskeletal Diseases.

机译:风湿病学实践中的全球挑战和机遇:风湿和骨骼肌肉疾病世界论坛的白皮书。

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摘要

Rheumatic and musculoskeletal diseases (RMDs) represent a multitude of degenerative, inflammatory and auto-immune conditions affecting millions of people worldwide. Persons with these diseases may potentially experience severe chronic pain, joint damage, increasing disability and even death. With an increasingly ageing population, the prevalence and burden of RMDs are predicted to increase, placing greater demands on the global practice of rheumatology and related healthcare budgets. Effective treatment of RMDs currently faces a number of challenges in both the developed and developing world, and individual countries may face more specific local challenges. However, limited understanding of the burden of RMDs amongst public health professionals and policy-makers means that these diseases are often not considered a public health priority. The objective of this review is to increase awareness of the RMDs and to identify opportunities to address RMD challenges on both a local and global scale. On 26 September 2014, rheumatology experts from five different continents met at the World Forum on Rheumatic and Musculoskeletal Diseases (WFRMD) to discuss and identify some key challenges for the RMDs community today. The outcomes are presented in this review, focusing on access to rheumatology services, diagnostics and therapies, rheumatology education and training and on clinical trials, as well as investigator-initiated and epidemiological research. The long-term vision of the WFRMD is to increase perception of the RMDs as a major burden to society and to explore potential opportunities to improve global and local RMD care.
机译:风湿性和肌肉骨骼疾病(RMD)代表着多种退行性,炎性和自身免疫性疾病,影响着全球数百万人。患有这些疾病的人可能潜在地遭受严重的慢性疼痛,关节损伤,残疾增加甚至死亡。随着人口的老龄化,RMD的患病率和负担预计将增加,这对风湿病的全球实践和相关的医疗保健预算提出了更高的要求。目前,在发达国家和发展中国家,有效治疗RMD都面临许多挑战,而个别国家可能会面临更加具体的地方挑战。但是,公共卫生专业人员和决策者对RMD负担的了解有限,这意味着这些疾病通常不被视为公共卫生的优先事项。这次审查的目的是提高对RMD的认识,并确定在本地和全球范围内应对RMD挑战的机会。 2014年9月26日,来自五大洲的风湿病专家在世界风湿和骨骼肌肉疾病论坛(WFRMD)上开会,讨论并确定了当今RMD社区面临的一些关键挑战。在本综述中介绍了结果,重点关注风湿病服务,诊断和治疗,风湿病教育和培训以及临床试验以及由研究人员发起的流行病学研究。 WFRMD的长期愿景是增加对RMD作为社会主要负担的认识,并探索改善全球和本地RMD护理的潜在机会。

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