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Health care experiences and perceived financial impact among families of children with an autism spectrum disorder.

机译:自闭症谱系障碍儿童家庭的医疗保健经验和财务影响。

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The authors compared the health care experiences of families raising a child with autism spectrum disorder (ASD), an intellectual disability disorder (IDD), or attention-deficit hyperactivity disorder (ADHD).Children with a current diagnosis of ASD (N=3,005), ADHD (N=9,662), or IDD (N=949) were identified in the 2009-2010 National Survey of Children With Special Health Care Needs. Weighted structural equation modeling was used to determine the association between family satisfaction with medical care, timeliness of care, and medical insurance coverage and the impact of the child's condition on the family's financial situation.Families of children diagnosed as having ASD comorbid with either ADHD or IDD or comorbid with both conditions reported the highest levels of dissatisfaction across all health care quality variables and experienced the greatest impact on the family's financial situation.The findings underscore the need for comprehensive and accessible health care services for children with ASD, particularly those with comorbid conditions.
机译:作者比较了抚养自闭症谱系障碍(ASD),智力障碍障碍(IDD)或注意力缺陷多动障碍(ADHD)的孩子的家庭的医疗保健经验,目前诊断为ASD的孩子(N = 3,005)在2009-2010年全国特殊健康儿童需求调查中确定了ADHD(N = 9,662)或IDD(N = 949)。加权结构方程模型用于确定家庭对医疗的满意度,护理的及时性和医疗保险的覆盖率以及孩子的状况对家庭财务状况的影响之间的关系。被诊断为患有ASD的孩子的家庭患有ADHD或IDD或同时患有两种疾病的报告显示,在所有医疗保健质量变量中,不满程度最高,并且对家庭财务状况的影响最大。研究结果突显了需要为ASD儿童(尤其是患有合并症的儿童)提供全面,可及的医疗服务条件。

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